Mission Statement and Goals
On this page you will find the APS Foundation of America, Inc's (APSFA) Goals and Mission Statement. Your generosity will help us reach these goals and help us further our mission.
If you'd like to make a donation to help support our mission, please click here to go to our Donate page. All donors will be recognized on our website.
Our Mission Statement
Founded in 2005, the APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, public awareness, research, and patient services for Antiphospholipid Antibody Syndrome (APS) in an effective and ethical manner.
- Downloaded the latest volume of "Antiphospho...What?"?
- Checked out our links page?
- Joined our online support forum?
- Shopped in our Cafepress* and Zazzle* stores for APS, Lupus, Infant Loss (& many more!) awareness items?
- Sent a family member or loved one flowers through our FlowerPetal* shop?
- Watched the videos on our YouTube page?
- Joined our mailing list to receive our newsletters and updates?
- Read how you can help the APSFA?
- Joined us on Facebook or Twitter?
- Submitted your patient story for our quarterly newsletter?
- Seen our segment on "Mystery Diagnosis"? You can buy it now on iTunes!
Our Goal Is:
- To offer understanding and support to individuals, family, friends, and care givers of Antiphospholipid Antibody Syndrome.
- To offer information about and education on Antiphospholipid Antibody Syndrome.
- To support research regarding Antiphospholipid Antibody Syndrome by keeping the latest information available and referring people to such agencies who do research.
- To raise funds to provide information and education through public donations, grants, fundraisers, sponsorships, and bequests.
- To bring national focus to Antiphospholipid Antibody Syndrome in the United States.
The APS Foundation of America, Inc. is the leading United States nonprofit health agency dedicated specifically to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, and young strokes and heart attacks. We are a volunteer-run, community-based, non-profit organization.
Women are more likely than men to be affected by APS. Some estimates say that 75% to 90% of those affected are women. For example, it has been estimated by some doctors that one third of all of young strokes (defined as under the age of 50) are due to APS.
In obstetrics it is estimated by some doctors that up to 25% of all women with 2 or more spontaneous miscarriages have APS. Some doctors believe that 1 in 5 of all Deep Vein Thrombosis (DVT), Pulmonary Embolism (PE), and even worse, amputations are due to APS. And it is believed that 40-50% of patients with Lupus also have APS. Still, with these statistics, APS rarely is discussed as a women's health issue and is misdiagnosed often. Therefore the total number of people affected and true statistics are unknown really.
Antiphospholipid Antibody Syndrome (APS) is an autoimmune disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. There are two known forms of APS. APS may occur in people with systemic lupus erythematosus, other autoimmune disease, or in otherwise healthy individuals. Sadly, when most people hear about APS and it being referred to as autoimmune disease, they incorrectly confuse the terms autoimmune with acquired immune deficiency syndrome (AIDS); or they think this is a form of cancer.
This lack of knowledge and awareness results in needless suffering for persons with APS. Misdiagnosis and / or delayed diagnosis usually result in damage to vital organs. The APS Foundation of America, Inc's vision is to bring national attention to APS as a common factor in multiple miscarriages, thrombosis, young strokes and heart attacks is vital in order to bring a joint effort to research, funding, early detection, and eventually, prevention and cure for APS.
The APS Foundation of America, Inc. emphasizes the dignity and equality common to all persons. The APS Foundation of America, Inc. does not discriminate against individuals on the basis of race, color, sex, sexual orientation, religion, disability, age, veteran status, ancestry, or national or ethnic origin.
Page last update: 11/13/10
The APS Foundation of America, Inc. website and forums are both volunteer run and funded by donations to the APSFA.
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DISCLAIMER: APS Foundation of America, Inc. website is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members is only an opinion. All information should be confirmed with your personal doctor. Always seek the advice of a trained physician in person before seeking any new treatment regarding your medical diagnosis or condition. Any information received from APS Foundation of America, Inc. website is not intended to diagnose, treat, or cure. This site is for informational purposes only. Please note that we will be listing all donor or purchaser's names on the Donor page of our foundation site. If you do not want your name listed, please contact us to opt out. If you think you may have a medical emergency, call your doctor or 911 immediately.