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Doctor Information
|
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*APS
Doctor List - *USA |
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|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
| |
|
*APS Doctor List - Canada |
|
|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
| |
|
*APS Doctor List - Other Countries |
|
|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
| |
|
*APS Doctor List - UK |
|
|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
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ACAM Find A Doctor |
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|
This database lists members on record of the
American College for Advancement in Medicine. Listing in this
database does not constitute a recommendation by ACAM or the APSFA. |
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Agency for Healthcare Research and Quality |
|
|
Tips on choosing a quality health provider, check
out this guide. |
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Antiphospholipid Antibodies by Sr. Stephan Moll (Q/A) |
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|
Q:"I've been diagnosed with anticardiolipin
antibody syndrome. I'm also a prothrombin 20210A heterozygote, and
have elevated homocysteine levels. Following several clots and a
stroke, my local health care providers are interested in getting me
seen by folks with more expertise/experience. Can you recommend
where we might turn?Is there an anticardiolipin expert here in the
US? Is there a center doing research or clinical trials in which I
might participate?" |
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Boston Hemophilia Center Staff Directory |
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Consumers'
Checkbook |
|
|
A nonprofit organization founded in 1974 with the
help of funding from the U.S. Office of Consumer Affairs, that
publishes market data on physicians, hospitals and health plans. |
| |
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DoctorDirectory.com |
|
|
Since 1996, DoctorDirectory.com has been the
leading independent online directory for finding a doctor by
specialty. Every year there are approximately 900 million physician
and patient appointments in the United States. Over 100 million of
those annual physician and patient appointments are first time
appointments, and over 60 million of those happen without a referral
from another physician or health plan. DoctorDirectory.com is a free
service to doctors and other medical professionals and their
prospective patients. DoctorDirectory.com provides physicians with
the following; 1) patients, 2) cash for research, 3) online samples,
4) practice management advice, and 5) many other services to help
their practice be successful. DoctorDirectory.com serves the world’s
leading pharmaceutical prescription drug manufacturing companies
with the following interactive Rx brand marketing solutions; Market
Research, eSampling (online samples), eDetailing (online details),
physician and patient messaging and online advertising targeted by
ailment or specialty. |
| |
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DoctorFinder through the American Medical Association |
|
|
DoctorFinder provides you with basic professional
information on virtually every licensed physician in the United
States. This includes more than 690,000 doctors. AMA member
physicians are offered an expanded listing that contains additional
information such as office hours, accepted insurance providers,
educational history and other helpful information. |
| |
|
Find a
Doctor on Book of Doctors - Ratings Reviews Free Doctor Listings
Directory |
|
|
Read what patients have to say about them on Book
of Doctors. Find a doctor in any speciality through our doctor
directory and read detailed patient reviews and ratings. Our doctor
listings provide as much information as possible to new patients
before they make their important health decision. Along with
detailed office information (hours, insurance plans, medicare,
education, certifications, etc.), visitors can find reviews,
recommendations or ratings about each doctor and submit new ratings
as well. Book of Doctors directory contains thousands of doctors and
growing daily so check back again if you don't find a doctor that
meets your needs. Please visit our sponsors to help support our free
directory (Watch Pavilion & Healio Health) |
| |
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Find a doctor using Yahoo |
|
|
Search by location, specialty, name, insurance,
or hospital |
| |
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Find a
Hematologist |
|
|
Find a Hematologist is a new service offered by
the American Society of Hematology (ASH) for both patients looking
for hematologists in their community and medical professionals who
want to make referrals. Users can search by name, location,
specialty, or clinical interest, and will be provided with contact
information for hematologists meeting the search criteria. |
| |
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Find
a Provider |
|
|
The Centers for Disease Control and Prevention
supports a network of specialized health-care centers to prevent and
reduce complications experienced by persons with certain hereditary
blood disorders. |
| |
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Find your
Doctor. Know your Doctor. |
|
|
|
| |
|
Geographic Membership Directory from the American College of
Rheumatology |
|
|
This compilation a proprietary product of the
American College of Rheumatology. The contents of our online
directory may not, in whole or in part, be reproduced, copied,
disseminated, entered into a computer database, or otherwise
utilized, in any form or manner or by any means, except for the
user’s individual, personal and confidential reference. You do not
have permission to make any copies of these lists or to contact more
than one doctor at a time via mass mailings, e-mail or fax
broadcasting, or telephone solicitation. Mailing lists are available
from the ACR for one-time use for purposes conducive to our mission. |
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Health
Pages (Find a Doctor) |
|
|
Health Pages is an online consumer health care
service. We publish reader-friendly information on general health
care topics and community-specific comparative information on
physicians, hospitals, allied health professionals and health plans.
Consumers can search our national database of over 500,000
physicians and compare doctors in any specialty according to their
experience, hospital affiliations, office services and fees. Health
Pages also incorporates the provider directories of over 300 managed
care plans into our physician superdirectory, which allows consumers
to determine what plans each doctor is affiliated with. The library
of articles on such topics as prostate cancer, managed care, Medigap
insurance policies, weight loss centers or maternity care are
applicable nationwide. What differs from city to city is the
comparative provider information. |
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HealthGrades |
|
|
A publicly traded company that rates hospitals,
physicians and nursing homes, offers a free, searchable database
that allows consumers to see how hospitals stack up. |
| |
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Hospital Compare |
|
|
This tool provides you with information on how
well the hospitals in your area care for all their adult patients
with certain medical conditions. This information will help you
compare the quality of care hospitals provide. Hospital Compare was
created through the efforts of the Centers for Medicare and Medicaid
Services (CMS) and organizations that represent hospitals, doctors,
employers, accrediting organizations, other Federal agencies and the
public. Talk to your doctor about this information to help you, your
family and your friends make your best hospital care decisions. |
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Joint
Commission on Accreditation of Healthcare Organizations |
|
|
Consumers can use to compare hospitals on quality
and safety measures. |
| |
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NIH Pediatric Rheumatology Clinic |
|
|
The NIH Pediatric Rheumatology Clinic is located
at: The National Institutes of Health Warren Grant Magnuson Clinical
Center 9000 Rockville Pike 10 Center Drive Building 10, Outpatient
13 Bethesda, MD 20892 |
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Physician Credentials: How Can I Check Them? |
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RateMDs.com -
Doctor Ratings and Reviews |
|
|
RateMDs.com allows patients to rate and read
about their doctors and dentists. This is a fairly new website, so
please add your doctors and rate them! |
| |
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Recommended Doctors |
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| |
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Second opinion counts for a lot |
|
|
© Copyright 2006 USA TODAY |
| |
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Sites for Checking Health-Related Credentials |
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This page was revised on January 31, 2005. |
| |
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SMFM Physician Locator |
|
|
The Physician Locator tool allows you to search
our database for members of the Society for Maternal-Fetal Medicine.
Results of the search will be based on the parameters that you enter
into the the form below. There is agreement you must accept before
using it. |
| |
|
Symptom Checker |
|
|
What's causing your foot pain? Why does your
child's throat hurt? And what should you do about it? Use this guide
to discover the most common causes of the most common symptoms. |
| |
|
WebMD Physician Directory |
|
|
The WebMD Physician Directory is compiled and
regularly updated by The Little Blue BookTM, a WebMD company. What's
more, all information in the directory is confirmed directly with
the source -- the doctors themselves. The award-winning Little Blue
Book is well-known in the medical industry for its accurate,
up-to-date physician information. |
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Top of Page |
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General Information
|
|
*APS Foundation of America, Inc Cafe Press Gear |
|
|
100% of the profits from these products will go
to the APS Foundation of America, Inc. APS Stands for
Antiphospholipid Antibody Syndrome, which is a blood disorder that
causes blood clots, strokes in young people and multiple
miscarriages in women. The APS Foundation of America, Inc. is
dedicated to fostering and facilitating joint efforts in the areas
of education, public awareness, research and patient services in an
effective and ethical manner. Thanks for looking! Please see our two
other cafe press sites at www.cafepress.com/lupusaps and
www.cafepress.com/thrombophilia |
| |
|
Acute neurologic symptoms—TIA, migraine, or something else? |
|
|
What diagnostic studies need your immediate
attention? What is the patient's short-term stroke risk? These
experts outline a rational approach to this often underestimated
emergency. |
| |
|
American Autoimmune Related Diseases Association |
|
|
The American Autoimmune Related Diseases
Association is dedicated to the eradication of autoimmune diseases
and the alleviation of suffering and the socioeconomic impact of
autoimmunity through fostering and facilitating collaboration in the
areas of education, research, and patient services in an effective,
ethical and efficient manner. |
| |
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American Society of Hematology Patient Resources |
|
|
ASH provides a wide variety of information and
resources for patients with blood disorders, such as links to
patient support groups, free access to Hematology (containing
current disease-specific information), and a Find a Hematologist
feature to help match patients with practicing hematologists in
their area. |
| |
|
Anxiety and Panic: Getting Control over Your Feelings |
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|
Anxiety can be a normal "alarm system" alerting
you to danger. Your heart beats fast. Your palms get sweaty. Your
mind races. Sometimes anxiety can give you energy to get things
done. But anxiety can get out of control and make you feel afraid
for no reason. Copyright © 2006 American Academy of Family
Physicians. |
| |
|
Blood & Marrow
Transplant Information Network (BMT InfoNet) |
|
|
Blood & Marrow Transplant Information Network
(BMT InfoNet) is working with staff at the National Cancer Institute
to identify the greatest challenges facing patients who have, or
have had, chronic graft-versus-host disease (GVHD). |
| |
|
Caring for a painful venous leg ulcer |
|
|
Hanne Vogensen presents a case study which
outlines the care of a Danish leg ulcer patient. Hanne Vogensen, RN
is a Tissue Viability Specialist, Bispebjerg Hospital, Copenhagen,
Denmark. Article accepted for publication: June 2006 |
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Choices You Must Make to Live Successfully with Chronic Illness |
|
|
Written by: Lisa Copen |
| |
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Deciphering Medspeak |
|
|
Like millions of Americans, you have probably
read a newspaper or magazine article, tuned into a radio or
television program, or searched the Internet to find answers to
health questions. If so, you have probably encountered "medspeak,"
the specialized language of health professionals. The Medical
Library Association has developed "Deciphering Medspeak" to help you
translate common "medspeak" terms. You'll also find some tips on how
to identify quality health care information on the Internet. |
| |
|
Depression: What You Should Know |
|
|
When doctors talk about depression, they mean the
medical illness called major depression. Someone with major
depression has symptoms like those listed in the box below nearly
every day, all day, for two weeks or longer. If you're depressed,
you may also have headaches, other aches and pains, stomach
problems, and problems with sex. An older person with depression may
feel confused or have trouble understanding simple requests.
Copyright © 2006 American Academy of Family Physicians. |
| |
|
Does
your doctor's lingo have you in a tizzy? |
|
|
By Dr. Judith Reichman “Today” show contributor
Updated: 1:08 p.m. ET Sept. 20, 2005 |
| |
|
Emotional Health: What You Should Know |
|
|
People with good emotional health are in control
of their thoughts, feelings, and the way they act. They feel good
about themselves and have good relationships. They can keep problems
under control. It's important to remember that even people with good
emotional health can sometimes have emotional problems or mental
illness. But people with good emotional health have learned how to
cope with stress and problems. Copyright © 2006 American Academy of
Family Physicians. |
| |
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End-of-Life Choices and Compassion In Dying |
|
|
Compassion & Choices maintains the mission of
improving care and choices at the end of life. Our combined strength
ideally positions us to make the greatest strides yet in our quest. |
| |
|
Frantic patients, lonely decisions on treatment |
|
|
The New York Times, MONDAY, AUGUST 15, 2005 |
| |
|
HealingWell.com |
|
|
Articles, news, information, video webcasts,
message forums and chat rooms, email, books, resource directory and
more. |
| |
|
healthfinder®
- your guide to reliable health information |
|
|
healthfinder® is an award-winning Federal Web
site for consumers, developed by the U.S. Department of Health and
Human Services together with other Federal agencies. Since 1997,
healthfinder® has been recognized as a key resource for finding the
best government and nonprofit health and human services information
on the Internet. healthfinder® links to carefully selected
information and Web sites from over 1,500 health-related
organizations. |
| |
|
How To Protect Yourself Against Lyme Disease |
|
|
Lyme disease is the most common tick-borne
disorder in the United States. Lyme disease can affect the joints,
nervous system, heart, skin, and eyes. |
| |
|
Influenza Symptoms, Protection, and What to Do If You Get Sick |
|
|
Page last modified January 14, 2006 |
| |
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Is Your Problem Brain Fog or Alzheimer's Disease? |
|
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|
| |
|
MedlinePlus |
|
|
MedlinePlus will direct you to information to
help answer health questions. MedlinePlus brings together
authoritative information from NLM, the National Institutes of
Health (NIH), and other government agencies and health-related
organizations. Preformulated MEDLINE searches are included in
MedlinePlus and give easy access to medical journal articles.
MedlinePlus also has extensive information about drugs, an
illustrated medical encyclopedia, interactive patient tutorials, and
latest health news. |
| |
|
MedSpeak Glossary of Terms |
|
|
Click on MedSpeak. The Medical Library
Association has developed "Deciphering Medspeak" to help you
translate common "medspeak" terms. You'll also find some tips on how
to identify quality health care information on the Internet. |
| |
|
National
Bone Marrow Transplant Link |
|
|
The nbmtLink is a non-profit organization
specifically serving stem cell transplant (SCT) patients, their
caregivers, families, and health professionals. In 1992, the
nbmtLink was founded by those who had experienced the gap in
information and support services for SCT patients and were inspired
to establish an organization dedicated to meet these needs. |
| |
|
National Center
for Health Statistics |
|
|
Welcome to the National Center for Health
Statistics' Web site, a rich source of information about America’s
health. As the Nation’s principal health statistics agency, we
compile statistical information to guide actions and policies to
improve the health of our people. We are a unique public resource
for health information–-a critical element of public health and
health policy. |
| |
|
National
Women's Health Resource Center (NWHRC) |
|
|
The not-for-profit National Women's Health
Resource Center (NWHRC) is the leading independent health
information source for women. NWHRC develops and distributes
up-to-date and objective women's health information based on the
latest advances in medical research and practice. |
| |
|
Next Steps After Your Diagnosis: Finding Information and Support |
|
|
Next Steps After Your Diagnosis offers general
advice for people with almost any disease or condition. And it has
tips to help you learn more about your specific problem and how it
can be treated. |
| |
|
Oh, by the way...why am I losing my hair? |
|
|
May 1, 2006. By: Sharon T. Phelan, MD.
Contemporary OB/GYN Registration Required |
| |
|
Quick Tips—When Getting Medical Tests |
|
|
AHRQ Publication No. 01-0040b, May 2002. Agency
for Healthcare Research and Quality, Rockville, MD. |
| |
|
Quick Tips—When Talking with Your Doctor |
|
|
AHRQ Publication No. 01-0040a, May 2002. Agency
for Healthcare Research and Quality, Rockville, MD. |
| |
|
Redefining Self Care |
|
|
Written by: Roz Laraway, MS Clinical Therapist,
Franciscan Skemp Healthcare “Here’s the deal. You are made up of a
body, a mind, and a spirit. When any one of these is in turmoil, it
affects the others.” |
| |
|
Search for and Buy APS Books on Amazon.com |
|
|
Search and Buy Books about APS on Amazon.com |
| |
|
Stress: How to Cope with Life's Challenges |
|
|
Stress is caused by the body's instinct to defend
itself. This instinct is good to have in emergencies, such as
getting out of the way of a speeding car. But it can cause physical
problems if it goes on for too long. When you have stress caused by
life's daily challenges, your body has to work overtime, with no
place to put all the extra energy. This can make you feel anxious,
afraid, worried, and uptight. Copyright © 2006 American Academy of
Family Physicians. |
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Striving for Quality Advance Care Planning |
|
|
written by Linda Briggs, RN, MS, MA Associate
Director Respecting Choices and Ethics Consultant |
| |
|
The importance of health literacy |
|
|
Millions of people in the US are unable to
adequately understand basic health information, and the consequences
can be grave |
| |
|
The MAGIC
Foundation |
|
|
The MAGIC Foundation is a national non-profit
organization created to provide support services for the families of
children afflicted with a wide variety of chronic and/or critical
disorders, syndromes and diseases that affect a child’s growth.
Since its inception the Foundation has grown to include support
services for adults who were also impacted by these disorders. |
| |
|
The
World's Healthiest Foods List, A-Z |
|
|
© 2002-2005 The George Mateljan Foundation |
| |
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US
Health and Human Services |
|
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|
| |
|
ValleyRally.com |
|
|
Valley Rally.com is a site that focuses on
achieving success. The inspirational stories of success posted by
our members will help give you the motivation and confidence to
overcome similar struggles in your life. |
| |
|
Vascular Disease Foundation |
|
|
Established in 1998 the Vascular Disease
Foundation (VDF) is the only multidisciplinary national public
501(c)(3) non-profit organization focused on vascular diseases with
the sole purpose of providing public education and improving
awareness about vascular diseases. The mission of the VDF is to
reduce death and disability from vascular diseases and improve
vascular health for all Americans. |
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Venous Access Port Problems |
|
|
Last Updated: July 15, 2001 |
| |
|
WedMD |
|
|
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| |
|
Welcome
to Precision BioLogic |
|
|
In the coagulation lab, you want confidence in
the results you are reporting. You want to do things quickly and get
it right the first time. |
| |
|
Welcome to
Your Support Hosiery Superstore! |
|
|
Information on Support Hose also has some links
to articles related to DVT and pulmonary embolisms. |
| |
|
Women's Conditions Health Center |
|
|
Women's health is an increasingly important field
of medicine. Here you'll find in-depth articles on women's health
issues such as chronic pelvic pain, fibroids, menstrual problems,
and menopause. |
| |
|
Top of Page |
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Genetic Clotting Problems
|
|
*Thrombophilia Awareness Project |
|
|
Formerly known as FVLeiden.org. This website is
run by a patient who has Factor V Leiden (FVL). This support site
has information on FVL and other hypercoagulable conditions, but it
is worth noting that not all of the information presented comes from
healthcare professionals and not all information is cited. The APSFA
does not have any control over the content of the TAP website and
cannot confirm that all information provided by it is accurate. |
| |
|
Activated protein C resistance |
|
|
This page was last modified 13:18, 16 August
2006. |
| |
|
Activated Protein C Resistance and Factor V Leiden: A Review |
|
|
Archives of Pathology and Laboratory Medicine:
Vol. 131, No. 6, pp. 866–871. |
| |
|
American College of Medical Genetics Consensus Statement on Factor V
Leiden Mutation Testing |
|
|
Wayne W. Grody, MD, PhD1, John H. Griffin, PhD2,
Annette K. Taylor, MS, PhD3, Bruce R. Korf, MD, PhD4, and John A.
Heit, MD5 (ACMG Factor V Leiden Working Group) © 2001-2005 American
College of Medical Genetics. All rights reserved |
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|
Antithrombin III Deficiency |
|
|
Antithrombin-III deficiency can cause or lead to
thrombosis, a clot forming in a blood vessel. If a clot attached to
a blood vessel wall breaks loose and travels in the bloodstream, it
is called an embolus. An embolus that reaches a blood vessel in the
lungs is called a pulmonary embolism. This type of clot can block
the blood vessel, cut off the oxygen supply to the lung tissue, and,
in some cases, cause death. Article Reviewed: 1999-03-17 |
| |
|
Congenital antithrombin III deficiency |
|
|
Update Date: 10/28/2003 Updated by: Ezra E. W.
Cohen, M.D., Section of Hematology/Oncology, Department of Medicine,
The University of Chicago, Chicago, IL. Review provided by VeriMed
Healthcare Network. |
| |
|
Congenital protein C or S deficiency |
|
|
These inherited disorders of blood coagulation
are caused by deficiency of the Vitamin K-dependent plasma proteins
C or S that are naturally occurring anticoagulants. The disorder
results in an increased tendency for intravascular blood clot
formation. Update Date: 4/15/2005 Updated by: Rita Nanda, MD,
Department of Medicine, Section of Hematology/Oncology, University
of Chicago Medical Center, Chicago, IL. Review provided by VeriMed
Healthcare Network. |
| |
|
Current approaches to the work-up of hypercoagulability:Prothrombin
20210 |
|
|
Information on Factor II G to A
(guainine-to-adenine) gene mutation/genetic predispositions to
thrombosis associated with mutation in the prothrombin gene. |
| |
|
Excess Factor VIII: A Common Cause of Hypercoagulability |
|
|
Abstract Background: Elevations of coagulation
factor VIII have recently been described in significant numbers of
patients with venous thromboembolism (VTE) previously thought to
have had an "idiopathic" event. Three patients from a family
practice are presented with recurrent VTE and increased factor VIII
levels. Method: The case histories and results of laboratory tests
were reviewed. Results: The 3 patients had no other clear
coagulopathy. In 2 of the 3, the increase was confirmed with a
second reading. Conclusions: Factor VIII assay should be considered
in the work-up of idiopathic, recurrent VTE. Long-term
anticoagulation may be appropriate in this setting. |
| |
|
Factor V deficiency |
|
|
Factor V deficiency is an inherited abnormal
blood coagulation disorder caused by a deficiency of the plasma
protein Factor V. |
| |
|
Factor V Leiden |
|
|
Factor V Leiden (sometimes Factor VLeiden) is a
hypercoagulability disorder in which Factor V, one of the
coagulation factors, cannot be deactivated. Factor V Leiden is the
most common hereditary hypercoagulability clotting disorder amongst
Eurasians, possibly affecting up to 5% of the population of the U.S.
It is named after the city Leiden (The Netherlands), where it was
first identified in 1994 by Prof R. Bertina et al. |
| |
|
Factor V Leiden - Cardiology Patient Page |
|
|
Circulation 2003; 107:e94-97. (c) 2003 American
Heart Association, Inc. |
| |
|
Factor V Leiden and Antiphospholipid Antibodies Are Significant Risk
Factors for Ischemic Stroke in Children |
|
|
(Stroke. 2000;31:1283.) © 2000 American Heart
Association, Inc. |
| |
|
Factor V Leiden and Pregnancy Issues Support Board |
|
|
This list is for people who have Factor V Leiden
or similar disorder (such as Inherited or Pregnancy Acquired
Thrombophilia) and are trying to get pregnant, already are pregnant,
or have been pregnant. Affected partners/family members are also
welcome. Within this group, it is not uncommon to have experienced a
pregnancy loss, so members are expected to be sensitive to the
serious nature of this group. This is a list of support, discussion,
and information-sharing. Any challenges or flames will not be
tolerated. Please note that new members are automatically moderated
to reduce list-spamming. This may cause initial posts to be
temporarily delayed in getting sent to the list. |
| |
|
Factor V Leiden thrombophilia |
|
|
Factor V Leiden thrombophilia is an inherited
disorder of blood clotting. Factor V Leiden is the name of a
specific mutation that results in thrombophilia, or an increased
tendency to form abnormal blood clots in blood vessels. People who
have the factor V Leiden mutation are at somewhat higher than
average risk for a type of clot that forms in veins, such as the
deep veins of the legs (deep venous thrombosis), or a clot that
travels through the bloodstream and lodges in the lungs (pulmonary
embolism). |
| |
|
Factor V Leiden Thrombophilia |
|
|
[Hereditary Resistance to Activated Protein C,
Factor V Leiden Mutation] Funded by the NIH • Developed at the
University of Washington, Seattle |
| |
|
Factor V Q506 Mutation (Activated Protein C Resistance) Associated
With Reduced Intrapartum Blood Loss - A Possible Evolutionary
Selection Mechanism |
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|
| |
|
Factor VII deficiency |
|
|
Factor VII deficiency is an inherited disorder
that causes abnormal blood clotting (coagulation), resulting from a
deficiency of the plasma protein factor VII. |
| |
|
Factor X deficiency |
|
|
Factor X deficiency is a disorder that causes
abnormal blood clotting (coagulation), resulting from a shortage of
a plasma protein called factor X. |
| |
|
Factor XII (Hageman factor) deficiency |
|
|
This is an inherited disorder that causes
prolonged clotting (coagulation) of blood in a test tube without a
clinical bleeding tendency, and results from a deficiency of the
plasma protein factor XII. |
| |
|
FDA Approves First Biologic to Treat Rare Clotting Disorder |
|
|
The U.S. Food and Drug Administration (FDA) today
licensed Ceprotin, the first biologic treatment for patients with a
rare genetic defect that can cause a potentially life-threatening
clotting disorder. Ceprotin is made from the plasma of healthy human
blood donors. It is a concentrated form of Protein C, a substance
normally manufactured in the liver that circulates in the plasma in
very small amounts. Protein C plays an important role in controlling
blood coagulation by preventing the formation and growth of blood
clots. |
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Genetic Counseling for Hereditary Thrombophilia |
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| |
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Hereditary Blood Disorders, NCBDDD, CDC |
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|
Hereditary defects in one or more of the clotting
factors can cause the formation of potentially dangerous blood clots
(thrombosis). Approximately 5-8% of the U.S. population has one of
these clotting disorders collectively called thrombophilia, a
propensity for blood clotting in which a genetic defect can be
identified that often results in thrombosis. More than 60,000
Americans die each year from venous thromboembolism; in addition,
nearly half of patients with deep vein clots experience long-term
health consequences that adversely affect their quality of life. |
| |
|
HIV infection and stroke: if not protein S deficiency then what
explains the relationship? |
|
|
Journal of Neurology, Neurosurgery, and
Psychiatry 2005;76:1331 |
| |
|
Homocyst(e)ine, Diet, and Cardiovascular Diseases - AHA Science
Advisory |
|
|
(Circulation. 1999;99:178-182.) © 1999 American
Heart Association, Inc. |
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Homocysteine and MTHFR Mutations: Relation to Thrombosis and
Coronary Artery Disease |
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|
(Circulation. 2005;111:e289-e293.) © 2005
American Heart Association, Inc. Elizabeth A. Varga, MS; Amy C.
Sturm, MS; Caron P. Misita, PharmD; Stephan Moll, MD |
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Molecular Genetics of Blood Clotting |
|
|
Summary: David Ginsburg is interested in
understanding the components of the blood-clotting system and how
disturbances in their function lead to human bleeding and
blood-clotting disorders. |
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|
Protein C Deficiency |
|
|
Protein C deficiency is a genetic trait that
predisposes one to the formation of venous clots. Protein C
deficiency was first described in 1981. |
| |
|
Protein C Deficiency : Article by Eleanor S Pollak, MD |
|
|
Protein C deficiency, a deficiency of the
anticoagulant protein C, is associated with a variably increased
risk of thrombosis. In the rare inherited homozygous or compound
heterozygous state, protein C deficiency is associated with severe
life-threatening neonatal purpura fulminans or massive venous
thrombosis. The inherited heterozygous state of protein C deficiency
most frequently is associated with deep venous thrombosis of the
lower limb but also may manifest in other venous locations. A
significant percentage of patients with protein C deficiency remain
asymptomatic. A family history is essential in assessing the
association of a patient's deficiency with the patient's risk of
thrombotic disease. Acquired protein C deficiency occurs in certain
clinical scenarios, but this most often is associated with a
transient predisposing factor. Last Updated: June 30, 2006 |
| |
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Protein S deficiency |
|
|
Haematologica, Vol 93, Issue 4, 498-501
doi:10.3324/haematol.12691. Copyright © 2008 by Ferrata Storti
Foundation. |
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|
Protein S
Deficiency And Thrombophilia |
|
|
Welcome to our web site. Protein S Deficiency
(PSD) is a rare blood disorder that affects just a few thousand
people worldwide. It is one of several known risk factors for
thrombophilia and can increase the risk of blood clots such as Deep
Vein Thrombosis (DVT) and Pulmonary Embolism (PE). |
| |
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Protein S Deficiency And Thrombophilia Chat Room (UK) |
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|
| |
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Protein S deficiency in HIV associated ischaemic stroke: an
epiphenomenon of HIV infection |
|
|
Journal of Neurology, Neurosurgery, and
Psychiatry 2005;76:1455-1456 |
| |
|
Prothrombin 20210 |
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|
Prothrombin is one of the blood clotting factors.
It circulates in the blood and when activated, is converted to
thrombin. Thrombin causes fibrinogen, another clotting factor, to
convert to fibrin strands, which make up part of a clot. |
| |
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Prothrombin 20210 Mutation (Factor II Mutation):Cardiology Patient
Page |
|
|
(Circulation. 2004;110:e15-e18.) © 2004 American
Heart Association, Inc. Elizabeth A. Varga, MS; Stephan Moll, MD |
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Rituxan for Treatment of Idopathic Factor VIII Inhibitors |
|
|
June 2003 Power Point Presentation |
| |
|
Selective IgA Deficiency |
|
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|
| |
|
Should one routinely screen for lipoprotein(a)? |
|
|
JOSEPH P. FROLKIS, MD, PhD Sections of Preventive
Cardiology and Preventive Medicine, Department of Preventive
Cardiology and Rehabilitation, Cleveland Clinic |
| |
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Strange inheritance patterns |
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|
Last Updated: 2/15/2004 |
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The Genetics of FVL, by Jennifer Rosenberg |
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Contributions in design from Jennifer Rosenberg. |
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Von
Willebrands Disease |
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Matt Klimshuk's Homepage |
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Top of Page |
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INR & INR Machines
|
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*INR Monitoring in Patients with Antiphospholipid Antibodies with
Finger Stick INR Machines. |
|
|
by: Stephan Moll, MD. A superb way to monitor
INRs (International Normalized Ratio) in patients on oral
anticoagulants who do NOT have antiphospholipid antibodies (APLA) is
though use of “point of care instruments”, where the INR is tested
on blood from a finger stick. This method gives fast results and is
used by many physicians’ offices and by some patients at home.
However, in patients with APLA on oral anticoagulants these
instruments may give inaccurate readings. |
| |
|
Anticoagulation
Forum |
|
|
"Recognizing the growing importance and
widespread use of antithrombotic therapy for individuals with
thromboembolic disorders, the Forum seeks to develop a network of
professionals committed to this therapeutic modality in order to
exchange information, provide medical education, and pursue
scientific investigation, with the ultimate goals of providing
professional development and enhancing the quality of medical care." |
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|
Antiphospholipid Antibody Syndrome (APS) - NO to Home INR Machines!! |
|
|
I started this blog to help get the word out that
Home INR machines are NOT safe to use for patients with
Antiphospholipid Antibody Syndrome. If you have APS, please read!
Thanks! |
| |
|
CoagCheck
Systems |
|
|
Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
This is for the CoaguChek, CoaguChekS and CoaguCheckXS. Please call
technical support at 800-428-4674 for more information. Those using
this machine should be getting vein draw comparisons at least every
6-8 weeks. The APSFA does not promote, sell or make money from this
company nor the vendors that sell them. |
| |
|
CoaguChek & CoaguChek S Strip Insert |
|
|
Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
This is for the CoaguChek & CoaguChekS. Please call technical
support at 800-428-4674 for more information. Those using this
machine should be getting vein draw comparisons at least every 6-8
weeks. The APSFA does not promote, sell or make money from this
company nor the vendors that sell them. |
| |
|
CoaguChek XS System - Patient Experience |
|
|
Registration Required to read story. "I called
Roche and expressed my concerns about the reliability of the
machine. They told me that at higher INRs (above 4.0) the machine
becomes less reliable. They also told me that the machine doesn't
work very well for people with Antiphospholipid Antibodies because
these same antibodies are on the test strips! She said that
especially when someone with APS is having a flare up the machine
may not work well due to the high level of antibodies in the blood." |
| |
|
CoaguChekXS Strip Insert |
|
|
Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
This is for the new CoaguChekXS. Please call technical support at
800-428-4674 for more information. Those using this machine should
be getting vein draw comparisons at least every 6-8 weeks. The APSFA
does not promote, sell or make money from this company nor the
vendors that sell them. |
| |
|
Devices for ambulatory and home monitoring of blood pressure,
lipids, coagulation, and weight management, part 2 |
|
|
Am J Health Syst Pharm.2005; 62: 1894-1903. Kelly
L. Scolaro, Pamela L. Stamm and Kimberly Braxton Lloyd Copyright ©
2005 by the American Society of Health-System Pharmacists. |
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Factors That Influence INR system Comparisons |
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|
List includes Antiphospholipid Antibodies. The
APSFA does not promote, sell or make money from this company nor the
vendors that sell them. |
| |
|
For those inquiring about HOME INR machines... |
|
|
Registration Required to read this patient
experience. "You're putting your life into a machine that is KNOWN
to be wrong with APS patients...think TWICE...THREE times...FOUR
times and Just say NO!" |
| |
|
Hemochron Jr. Package Insert |
|
|
Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
Those using this machine should be getting vein draw comparisons at
least every 6-8 weeks. The APSFA does not promote, sell or make
money from this company nor the vendors that sell them. |
| |
|
Home
INR Machines and Antiphospholipid Antibodies |
|
|
Home INR machines do not give accurate readings
in about 1/3 rd of patients with antiphospholipid antibodies who are
on warfarin. This is not due to the machine malfunctioning, but
likely due to antibodies interfering with the test method of the
home INR machines. In one third of patients with antiphospholipid
antibodies the INRs read by the home INR machines are unreliable:
(a) they either read too high, compared to INRs tested in a
laboratory from an i.v. stick (reference 2), or (b) the instruments
flash up an error message (reference 1). This inaccuracy is likely
caused by the presence of the antiphospholipid antibodies. Since
antibody levels can fluctuate over time, the instrument may give
accurate readings at times when the antibody levels are low, but
inaccurate ones at times when the levels are higher. This is a
phenomenon not unique to the Coaguchek® instrument, but is also seen
with the ProTime® and the INRatio® instruments (reference 1,2). In
patients who do not have antiphospholipid antibodies the home INR
machines give reliable readings and are a good way to monitor
warfarin therapy (ref. 3). Last Updated: 8/22/06 |
| |
|
i-STAT® PT/INR test |
|
|
The i-STAT® PT/INR test is a whole blood
determination of the prothrombin time used for monitoring oral
anticoagulant (warfarin) therapy. The test determines the time
required for complete activation of the extrinsic pathway of the
coagulation cascade when initiated (activated) with a
thromboplastin. Those using this machine should be getting vein draw
comparisons at least every 6-8 weeks. |
| |
|
INR |
|
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|
| |
|
INR Self Testing |
|
|
INRs from POC instruments are unreliable in about
1/3rd of patients with the clotting disorder called antiphospholipid
antibody syndrome (APLA syndrome) who are on warfarin. In these
patients, the POC devices give INR readings that are too high, or
the instruments report error messages. This is the case with any of
the 3 instruments on the market. If you have APLA syndrome, your
INRs should be checked from blood drawn from a vein and tested in a
laboratory. |
| |
|
INRatio by Hemosense |
|
|
Representatives & Literature clearly states that
this machine has problems with APS patient and patients with the
Lupus Anticoagulant. Please see:
http://www.hemosense.com/docs/5500317_TechBull108_AntiPhospholipid_RevA.pdf
Those using this machine should be getting vein draw comparisons at
least every 6-8 weeks. The APSFA does not promote, sell or make
money from this company nor the vendors that sell them. |
| |
|
INRatio Monitor and Interfering Substances |
|
|
Anti-phospholipid antibodies can disrupt the
phospholipid in the PT reagent that is necessary for the clotting
reaction to occur thus artificially elevating the INR. The APSFA
does not promote, sell or make money from this company nor the
vendors that sell them. |
| |
|
My
Experience with Finger Stick (Home) INR Machines |
|
|
Patient's story on her use of a Home INR Machine
and supporting company information. |
| |
|
Patient Variables in PT/INR Testing with INRatio |
|
|
Technical Bulliten from HemoSense makers of
INRatio. Clearly states that APS effects its results. The APSFA does
not promote, sell or make money from this company nor the vendors
that sell them. |
| |
|
Point-of-care testing of the international normalized ratio in
patients with antiphospholipid antibodies. |
|
|
SL Perry, GP Samsa, and TL Ortel Thromb Haemost,
December 1, 2005; 94(6): 1196-202. Antiphospholipid antibodies can
influence the results of clotting tests in a subset of patients,
which can be a major obstacle in monitoring warfarin.The aim was to
determine if point-of-care testing of the International Normalized
Ratio (INR) is influenced by antiphospholipid antibodies. Please
note the manufacture of this machine helped fund this study. |
| |
|
Protime
Machine |
|
|
Representatives clearly state that this machine
has problems with APS patients and patients with the Lupus
Anticoagulant. Waiver for patients with APS must be signed. Those
using this machine should be getting vein draw comparisons at least
every 6-8 weeks. The APSFA does not promote, sell or make money from
this company nor the vendors that sell them. |
| |
|
ProTime Microcoagulation System Package Insert |
|
|
Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
Those using this machine should be getting vein draw comparisons at
least every 6-8 weeks. The APSFA does not promote, sell or make
money from this company nor the vendors that sell them. |
| |
|
Questions and Answers: For Use with CoaguChek® Test Strip Urgent
Medical Device Correction (UMDC) 06-266 and Urgent Medical Device
Recall (UMDR) 06-267 |
|
|
11/16/06: CoaguChekS now has a 30% +/- acceptable
standard of deviation. |
| |
|
Thoratec Receives FDA Warning Letter, Plans Recall (ProTime) |
|
|
Thoratec’s International Technidyne Corp. (ITC)
division has received an FDA warning letter citing concerns about
its quality systems, specifically those related to certain lots of
its ProTime System anticoagulation monitoring device.....of
incorrect readings of patient blood coagulation levels. |
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|
Top of Page |
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|
Loss Information
|
|
American
Child Photographers Charity Guild (ACPCG) |
|
|
A non-profit, volunteer based organization of
child photographers from all over the country who have come together
to form a guild dedicated to children in need and their families. |
| |
|
Association for Death Education and Counseling |
|
|
ADEC is one of the oldest interdisciplinary
organizations in the field of dying, death and bereavement. Its
nearly 2,000 members include a wide array of mental and medical
health personnel, educators, clergy, funeral directors and
volunteers. |
| |
|
Babyloss Website |
|
|
The Babyloss website provides information and
support online for anyone affected by the death of a baby during
pregnancy, at birth, or shortly afterwards. |
| |
|
Born Too Soon |
|
|
An Excellent online support group which offers
support and information about losing a baby |
| |
|
Center for
Loss in Multiple Birth |
|
|
We are a 501(c)(3) non-profit organization based
in Anchorage, Alaska, serving families and others throughout the
United States, Canada and beyond. Our mission is, and always has
been, to provide parent-to-parent support for all of us who have
experienced the death of one or more of our twins or higher multiple
birth children at any time from conception through birth, infancy
and early childhood. It is also to assist extended families,
caregivers, twins and multiples organizations and others who are
seeking to understand and support the needs of parents with a
multiple birth loss. While it is not officially in our mission, we
have come to believe in the importance of greater education of the
public on the risks and realities of multiple births, and how often
they include tragedy and grief--and the importance of prevention of
multiple birth loss. |
| |
|
Child
Bereavement |
|
|
|
| |
|
Finding A Therapist |
|
|
Even the best mental health professional cannot
take away the stinging pain of a child's death. An effective
grief-trained therapist will walk with you, help you connect with
your feelings, and help you discover ways to cope with the
overwhelming sense of loss. |
| |
|
Grief Following Miscarriage: A Comprehensive Review of the
Literature |
|
|
Norman Brier. Journal of Women's Health. April 1,
2008, 17(3): 451-464. doi:10.1089/jwh.2007.0505. Conclusions:
Although additional research is clearly needed, guidelines for
coping with grief following miscarriage can be based on the data
available on coping with other significant types of losses. Given
the range of potential meanings for this primarily prospective and
symbolic loss, practitioners need to encourage patients to
articulate the specific nature of their loss and assist in helping
them concretize the experience. |
| |
|
Help! How do we deal with the loss of our baby? |
|
|
|
| |
|
Honored
Babies |
|
|
|
| |
|
Hygeia
Foundation, Inc. |
|
|
Welcome to Hygeia® and the Hygeia Foundation,
Inc. & Institute for Perinatal Loss & Bereavement, a global
community and Internet portal providing programs to educate, counsel
and support families who grieve the loss of a pregnancy or newborn
child, advocate for the healthcare of women and children, worldwide,
and promote humanism in the education of tomorrow's healthcare
professionals. |
| |
|
Miscarriage
Help |
|
|
A site for those who have suffered a miscarriage.
Hosted by Ellen DuBois, author of I Never Held You. |
| |
|
Miscarriages May Be A Symptom Of Greater Health Risk |
|
|
©2004 Elites TV |
| |
|
My Forever Child™ |
|
|
Our mission at My Forever Child™ is to create
unique acknowledgement and memorial keepsakes, remembrance jewelry
and sympathy gifts to comfort those touched by the loss of a Child,
no matter what age- miscarriage, stillbirth, pregnancy and infant
loss, newborn baby, toddler, older child, teen and adult death. |
| |
|
Now I
Lay Me Down to Sleep |
|
|
Infant bereavement photography allowing families
to honor and cherish their babies, and share the spirits of their
lives. |
| |
|
NZ
Miscarriage Association |
|
|
|
| |
|
October 15th,
Pregnancy and Infant Loss Remembrance Day |
|
|
Pregnancy and Infant Loss Remembrance Day is to
promote Support, Education and Awareness for grieving parents
nationwide (and worldwide). Too many families grieve in silence,
sometimes never coming to terms with their loss. Our goal is to help
others relate to our loss, know what to say, do or not say, not do
and to help families live with their loss, not "get over" their
loss. |
| |
|
Perinatal
Hospice |
|
|
If you are here because of a prenatal diagnosis
that indicates your baby likely will die before or after birth, we
are so sorry. Perhaps you are considering continuing your pregnancy
and embracing whatever time you may be able to have with your baby,
even if that time is only before birth, while your baby is cradled
safely inside of you. Please know that support is available (see the
links on this site) and that you are not alone. Parents who have
traveled this path before you have found that it can be a beautiful,
profoundly meaningful, and healing journey. |
| |
|
Perinatal Hospice |
|
|
Newborn and Infant Nursing Reviews. Volume 7,
Issue 4, December 2007, Pages 216-221.e4 Fetal Therapeutics. |
| |
|
Pregnancy Loss and Infant Death Alliance |
|
|
The Pregnancy Loss and Infant Death Alliance has
a unique purpose: to provide a formal network and a unified national
presence to increase awareness and education on the emotional
experiences and needs of bereaved families. PLIDA’s goal is to
become a central place for parents, their concerned relatives and
friends, and interested professionals, media, and policy makers to
find information on the emotional aspects of pregnancy loss and
infant death. PLIDA also organizes the biennial National Perinatal
Bereavement Conference. |
| |
|
Pregnancy Loss: What You Should Know |
|
|
Copyright © 2007 American Academy of Family
Physicians. |
| |
|
Recurrent Pregnancy Loss: Evaluation and Discussion of the causes
and their management |
|
|
Cleveland Clinic Journal of Medicine, Volume 73,
Number 10, October 2006, Pages: 912-921 |
| |
|
Remembering Precious Babies |
|
|
Written by: Madonna Daley, MS, RN Bereavement
Educator. |
| |
|
RTS
Perinatal Bereavement Program |
|
|
In 1981, Bereavement Services developed a
comprehensive approach to caring for families whose babies died
during pregnancy or shortly after birth. The RTS program (formerly
known as Resolve Through Sharing) was unique in healthcare. Today,
more than 29,000 healthcare professionals have completed RTS
Training. Based on our experience and research, we've found that
these skills can be learned. We've developed other courses and a
wide range of resources to support continued bereavement care and
education throughout the world. |
| |
|
Second Trimester Pregnancy Loss |
|
|
Am Fam Physician 2007;76:1341-6, 1347-8.
Copyright © 2007 American Academy of Family Physicians. |
| |
|
Share:
Pregnancy and Infant Loss Support, Inc |
|
|
The mission of Share Pregnancy and Infant Loss
Support, Inc. is to serve those whose lives are touched by the
tragic death of a baby through early pregnancy loss, stillbirth, or
in the first few months of life. |
| |
|
StorkNet-Pregnancy/Infant Loss Information |
|
|
Pregnancy/Infant Loss Links and Support Groups |
| |
|
The
Compassionate Friends |
|
|
The mission of The Compassionate Friends is to
assist families toward the positive resolution of grief following
the death of a child of any age and to provide information to help
others be supportive. The Compassionate Friends is a national
nonprofit, self-help support organization that offers friendship,
understanding, and hope to bereaved parents, grandparents and
siblings. There is no religious affiliation and there are no
membership dues or fees. The secret of TCF's success is simple: As
seasoned grievers reach out to the newly bereaved, energy that has
been directed inward begins to flow outward and both are helped to
heal. The vision of The Compassionate Friends is that everyone who
needs us will find us and everyone who finds us will be helped. |
| |
|
The MISS
Foundation |
|
|
The M.I.S.S. Foundation is a nonprofit, 501(c)3,
international organization which provides immediate and ongoing
support to grieving families, empowerment through community
volunteerism opportunities, public policy and legislative education,
and programs to reduce infant and toddler death through research and
education. |
| |
|
UK Miscarriage Association |
|
|
General Information about miscarriage and support |
| |
|
Welcome to GriefShare |
|
|
You've discovered a special place where you can
find help as you grieve the loss of a family member or friend. |
| |
|
Welcome to the
Centering Corporation and Grief Digest |
|
|
The Centering Corporation is a non-profit
organization dedicated to providing education and resources for the
bereaved. Centering was founded in 1977 by Joy and Dr. Marvin
Johnson. We started with nine little coloring books for hospitalized
children and two workshop offerings for nurses and families. In
response to the need for support by families and caregivers while
facing their grief experience we developed many new resources. Today
we have over 100 books and for children and adults, My Friends
Emotion Dolls, a Memory Bag for children, five videos and caring
cards, plus over 200 books and resources from other publishers. We
continue to provide educational offerings and workshops for
caregivers and families. The second generation, Janet and Ben Sieff,
brings new life and ideas to meet our changing needs in todays
bereavement experiences. |
| |
|
When a Miscarriage Isn't Nature's Way |
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Top of Page |
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|
Lupus Information - General
|
|
American College of Rheumatology |
|
|
Great place to look for board certified
Rheumatologists. |
| |
|
Care of the Lupus Patient |
|
|
By NIAMS. WebMD Public Information from the
National Institutes of Health |
| |
|
Caring for patients with systemic lupus erythematosus |
|
|
Nursing, Nov 1995 by Ferrante, Christine,
Derivan, Mary Collins |
| |
|
Christine Ostwinkle Foundation for Lupus |
|
|
The Christine Ostwinkle Foundation for Lupus is
dedicated to helping families win their fight against Lupus,
providing information and statistics regarding Lupus, and assisting
researchers in finding a cure. |
| |
|
Dorough Lupus Foundation |
|
|
The Dorough Lupus Foundation is an independent,
non-profit organization. The Foundation's goals are to aide in
research and educate the public about Lupus. |
| |
|
Faces of Lupus |
|
|
Notice NOT all of these faces have a very
prominent rash or a rash at all. |
| |
|
Frequently Asked Questions About Lupus |
|
|
December 3, 2004 |
| |
|
Laboratory Tests Used to Diagnose and Evaluate SLE |
|
|
The National Institute of Arthritis and
Musculoskeletal and Skin Diseases of The National Institutes of
Health. Laboratory Tests Used to Diagnose and Evaluate SLE. Last
revised, January 26, 1999. |
| |
|
Living with Lupus |
|
|
Nation's Business, March, 1993 by Marcia J. Pear |
| |
|
Lupus |
|
|
Written by: Rosalind Ramsey-Goldman, MD, DrPH -
Northwestern University, Chicago, IL Published on: June 24, 2001
Editorial Review: October 14, 2004 |
| |
|
Lupus |
|
|
The following is a transcript of a talk Dr. Petri
gave at the British Columbia Lupus Society Symposium in November,
2002. |
| |
|
Lupus (SLE) Patient Booklet |
|
|
This booklet is written for people with lupus and
their families and friends. It explains how lupus develops, how it
affects different parts of the body, how it can affect people in
different ways, and how doctors diagnose it. We then explain how it
can be treated and offer tips and advice on living with it more
easily. Near the end of the booklet you will find information on how
to contact the Arthritis Research Campaign (arc), and a few
suggestions for further reading. We have also included a glossary of
medical words (like cartilage). We have put these in italics when
they are first used in the booklet. |
| |
|
Lupus erythematosus in children: A report of six cases |
|
|
Samy Fenniche MD, Sana Triki MD, Rym Benmously
MD, Hayet Marrak, MD Feiza Ben Ammar MD, Insaf Mokhtar MD
Dermatology Online Journal 11 (2): 11 Dermatology Department, Habib
Thameur Hospital, Tunis. |
| |
|
Lupus Foundation of America |
|
|
With nearly 300 chapters, branches and support
groups in 32 states, the Lupus Foundation of America (LFA) is the
nation's leading non-profit voluntary health organization dedicated
to finding the causes and cure for lupus. Our mission is to improve
the diagnosis and treatment of lupus, support individuals and
families affected by the disease, increase awareness of lupus among
health professionals and the public, and find the causes and cure.
Research, education, and patient services are at the heart of LFA's
programs. |
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Lupus Health Center |
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Nine out of ten people who have lupus are women.
Get in-depth information on lupus, its causes, symptoms, and
treatments. Plus, find daily help in our online support group. |
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Lupus Italy |
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This page is in Italian. |
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Lupus Research Institute Rewrites the Headlines on Heart Disease |
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Lupus Site (SLE)-
Lupus Symptoms |
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Lupus: A Patient Care Guide for Nurses and Other Health
Professionals |
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Revised September 2006. Lupus: A Patient Care
Guide for Nurses and Other Health Professionals is intended to
provide an overview of lupus and how to care for patients who have
the disease. It is not intended to provide medical guidelines for
diagnosing and treating lupus, nor is it intended to be
all-inclusive. Specific medical advice is not provided, and NIAMS
urges readers to consult with a qualified physician for diagnosis
and for answers to individual questions. |
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Lupus: Living With The Wolf |
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Published/Last Reviewed on: October 16, 2004 |
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S.L.E. Lupus Foundation |
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|
Founded in 1970, the Foundation helps people with
lupus, as well as their families and friends, cope with the
anxieties and frustrations that often accompany daily living with a
chronic illness. Sharing information and networking among patients
and their families further helps dispel myths and provides daily
support to those learning to live with lupus. We invite you to take
full advantage of our comprehensive resources. |
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St. Thomas' Lupus
Trust |
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The official website of the St. Thomas' Lupus
Trust and Dr. Graham Hughes. This website contains information for
medical professionals, patients and supporters. |
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Systemic Lupus And The Nervous System |
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Although nervous system involvement in systemic
lupus erythematosus (SLE) is unclear and controversial, people with
lupus do often experience signs associated with the body's nervous
system, such as: headaches, confusion, difficulty with
concentration, fatigue, occasional seizures or strokes. |
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SYSTEMIC LUPUS ERYTHEMATOSUS |
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Updated May 2004 Written by Ellen Ginzler, MD,
and Jean Tayar, MD, and reviewed by the American College of
Rheumatology Communications and Marketing Committee. |
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Systemic Lupus Erythematosus |
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© 2000, Family Practice Notebook, LLC . These
pages are best viewed with Microsoft Internet Explorer 5.0 or
greater for full functionality. This is one page of 12 in this
chapter, 140 in this book, and 4645 in the Family Practice Notebook. |
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Systemic Lupus Erythematosus |
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Adapted with permission from Madhok R, Wu O.
Systemic lupus erythematosus. Clin Evid Handbook June 2007:368-70. |
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Systemic Lupus Erythematosus and Sjogren Syndrome |
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Posted 11/25/2002 Michael D. Lockshin, MD; Jane
E. Salmon, MD Registration Required. |
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Systemic lupus erythematosus: Unmasking a great imitator |
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Nursing2005, November 2005 |
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The DRM WebWatcher Lupus |
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Treatment of Systemic Lupus Erythematosus: An Update |
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This article suggests an INR of 3 to 4 for
patients with APS. Dr. Petri is one of the leading APS specialists
and this webpage would be good to show your doctor if you are having
a problem getting him/her to take you seriously that our INRs need
to be higher. American Family Physician® > Vol. 57/No. 11 (June,
1998) |
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We Have Lupus |
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What can you say about systemic lupus erythematosus? |
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Copyright Springhouse Corporation Aug 2004 |
| |
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What is Systemic Lupus Erythematosus? |
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Published: Mar/Apr 2005 |
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What the Lupus Butterfly Looks Like |
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Top of Page |
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Lupus Information - Journal Articles
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"Joining the dots" for patients with systemic lupus erythematosus:
personal perspectives of health care from a qualitative study |
|
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Annals of the Rheumatic Diseases 2006;65:585-589;
doi:10.1136/ard.2005.037077 © 2006 by BMJ Publishing Group Ltd &
European League Against Rheumatism. Conclusions: Patients with SLE
do not feel understood by health care providers or people close to
them. Support from trained volunteers with SLE, as available at the
open access lupus clinic in Dudley (West Midlands, UK), would ensure
more adequate information from someone with personal experience.
Such services may improve communication and help minimise SLE
patients’ isolation. |
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A case of systemic lupus erythematosus discovered from left heart
failure due to lupus induced mitral regurgitation |
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Ryumachi. 1999 Oct;39(5):778-83. A 50-year-old
female was admitted to a local hospital because of dyspnea, and
diagnosed as having left heart failure secondary to mitral
regurgitation. After the improvement of congestive heart failure,
polyarthralgia, fever, and positive anti-nuclear antibody were
pointed out. She was referred to our hospital for the further
evaluation. Serological test showed anti-double stranded DNA
antibodies, anti-SS-A antibodies, anti-beta 2-GPI antibodies and
biological false positive for syphilis. The diagnosis of SLE has
been made from the clinical signs and the serology. Therefore mitral
valvular lesion of this patient was considered to be one of the
symptoms of SLE. We reported a rare case in which left heart failure
was a initial clinical manifestation of SLE. |
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Activation of transforming growth factor-β1 and early
atherosclerosis in systemic lupus erythematosus |
|
|
Arthritis Research & Therapy 2006, 8:R81
doi:10.1186/ar1951. Conclusion: Impairment of the TGF-β1 system in
SLE not only may impact on the autoimmune pathophysiology of the
disease but also may modulate the development of atherosclerosis and
the increased risk for cardiovascular disease. Low activation of
TGF-β1 is associated with increased apoptosis of PBMCs, increased
carotid IMT, high levels of LDL-cholesterol and more severe SLE
disease score. The factors in blood that modulate activation of
TGF-β1 remain obscure, but the link with LDL-cholesterol opens up a
novel atherogenic pathway that requires further study. |
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Association of cerebrospinal fluid anti-ribosomal P protein
antibodies with diffuse psychiatric/neuropsychological syndromes in
systemic lupus erythematosus |
|
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Arthritis Research & Therapy 2007, 9:R44
doi:10.1186/ar2184. |
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Brain involvement in systemic immune mediated diseases: magnetic
resonance and magnetisation transfer imaging study |
|
|
OBJECTIVE: Magnetisation transfer imaging (MTI)
provides information about brain damage with increased pathological
specificity over conventional MRI and detects subtle abnormalities
in the normal appearing brain tissue, which go undetected with
conventional scanning. Brain MRI and MTI findings were compared in
patients with multiple sclerosis (MS) and systemic immune mediated
diseases (SIDs) affecting the CNS to investigate their roles in
understanding the nature of brain damage in these diseases.
METHODSBrain dual echo, T1 weighted and MTI scans were obtained in
patients affected by systemic lupus erithematosus (SLE) with (NSLE,
n=9) and without clinical CNS involvement (n=15), Behçet's disease
(BD) (n=5), Wegener's granulomatosis (WG) (n=9), and
antiphospholipid antibody syndrome (APLAS) (n=6). Ten patients with
clinically definite MS and 15 healthy controls also underwent the
same scanning protocol. Brain MRI and MT ratio (MTR) images of the
same subject were coregistered and postprocessed to obtain MTR
histograms of the whole brain and of the NABT. RESULTSBrain
hyperintense lesions were found in all patients with MS and with
NSLE and in 5/15 patients with SLE, 5/9 with WG, 1/5 with BD, and
3/6 with APLAS. The lesion burden in the brain was significantly
higher in patients with MS compared with all the other disease
groups. All MTR histogram parameters were significantly different
among patient subgroups. Patients with MS had significantly lower
average MTR than all except patients with NSLE and significantly
lower peak height and location than patients with SLE. patients with
NSLE had significantly lower average MTR than patients with SLE.
CONCLUSIONSMicroscopic brain tissue damage is relevant in patients
with MS, but, apart from patients with NSLE, it seems to be absent
in systemic immune mediated diseases, even in the presence of
macroscopic MRI lesions or clinical evidence of CNS involvement. (J
Neurol Neurosurg Psychiatry 2000;68:170- |
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Cardiac abnormalities in SLE: pancarditis. |
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|
Lupus. 2000;9(4):236-40. Many patients with
systemic lupus erythematosus (SLE) develop cardiac manifestations
during the course of their disease. Pericarditis is most commonly
seen, with a reported prevalence of 60%. Myocardial involvement is
present in only a minority of patients. In recent years, due to
better noninvasive diagnostic techniques, valvular abnormalities can
be demonstrated in an increasing number of patients. Depending on
the technique used, valvulopathy can be demonstrated in up to 77% of
SLE patients. Although most of the valvular lesions will be present
without any symptoms, valve incompetence can result in congestive
heart failure. Valvular lesions are associated with IgG
anticardiolipin antibodies (aCL) and disease duration. We present a
patient with SLE and secondary antiphospholipid syndrome (APS) who
developed acute congestive heart failure due to pancarditis.
Endocarditis, together with left ventricular dysfunction and
pericardial effusion, were present. The endocarditis caused
hemodynamically significant mitral valve insufficiency due to
thickening of the mitral cusps. Just two weeks prior to the
occurrence of congestive heart failure echocardiography had been
normal. Treatment with high dose corticosteroids resulted in a
gradual, almost complete recovery. Literature concerning cardiac
manifestations in lupus is reviewed. |
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Case Definitions for Neuropsychiatric Syndromes in Systemic Lupus
Erythematosus |
|
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Common Variable Immunodeficiency in Systemic Lupus Erythematosus |
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|
Seminars in Arthritis and Rheumatism Volume 36,
Issue 4 , February 2007, Pages 238-245
PSORIASIS-SPONDYLITIS-SLE-SS-SAUDI. Conclusions: CVID should be
suspected in any SLE patient with recurrent sinopulmonary infections
in the absence of SLE activity and/or immunosuppressive treatment. |
| |
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Does Patient with Lupus Have Plaquenil Retinopathy? |
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Genitourinary complications of systemic lupus erythematosus. |
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|
Pediatr Nephrol. 2000 May;14(5):416-21. A
14-year-old African-American girl was diagnosed with
antiphospholipid-positive systemic lupus erythematosus (SLE) in July
1994. The course was complicated by nephrotic syndrome, sepsis,
hemolytic anemia, acute renal failure, saphenous vein thrombosis,
cutaneous vasculitis, mesenteric vasculitis, appendicitis,
hemorrhagic cystitis, and avascular necrosis of the hips. In August
1997, she developed ovarian and fallopian tube complications
secondary to SLE. Genitourinary complications of SLE, however, are
uncommon, and ovarian vasculitis has not previously been reported as
a complication of SLE. This report describes the course of an
adolescent patient with SLE and focuses specifically on her
genitourinary complications. |
| |
|
Hyperinsulinemia, Insulin Resistance, and Circulating Oxidized Low
Density Lipoprotein in Women with Systemic Lupus Erythematosus |
|
|
J Rheumatol 2006;33:50-6 Conclusion. Nondiabetic
patients with SLE have evidence of significant decrease in
sensitivity to insulin, and overall this population has a high
prevalence of the metabolic syndrome (18%). Insulin resistance in
the context of SLE was not strongly related to current or recent
steroid therapy; it was, however, associated with higher levels of
ox-LDL. Insulin resistance may therefore represent an additional CHD
risk factor in patients with SLE. |
| |
|
Migraine During Systemic Lupus Erythematosus: Findings from Brain
Single Photon Emission Computed Tomography |
|
|
J Rheumatol 2006;33:2184-91. Conclusion. Brain
perfusion SPECT is a sensitive tool for identifying brain impairment
in SLE-related migraine, although the mechanisms of brain damage
remain to be elucidated. Besides confirming focal hypoperfusion in
some patients, in 4 patients statistical analysis revealed
interictal hypofunction of the anterior cingulate cortex, a key
structure for cortical elaboration of pain in the midline network. |
| |
|
Occurrence of cerebral embolic signals in patients with systemic
lupus erythematosus |
|
|
J Neurol Neurosurg Psychiatry. Published Online
First: 24 February 2006. doi:10.1136/jnnp.2005.084285 © 2006 by BMJ
Publishing Group Ltd |
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|
Persistent periorbital edema as a sole manifestation of cutaneous
lupus erythematosus: Report of two cases |
|
|
Dermatology Online Journal 12 (2): 14. Abstract:
In lupus erythematosus, dramatic periorbital edema and erythema
without any evidence of other significant cutaneous or systemic
involvement is unusual. We describe two patients with severe
periorbital edema and erythema as the sole manifestation of
cutaneous lupus erythematosus. |
| |
|
Premature morbidity from cardiovascular and cerebrovascular diseases
in women with systemic lupus erythematosus. |
|
|
Arthritis Rheum. 1999 Feb;42(2):338-46.
CONCLUSION: Young women with SLE are at substantially increased risk
of AMI, CHF, and CVA. The relative odds of these conditions decrease
with age among women with SLE. |
| |
|
Reduced uptake of apoptotic cells by macrophages in systemic lupus
erythematosus: correlates with decreased serum levels of complement |
|
|
Annals of the Rheumatic Diseases 2006;65:57-63;
doi:10.1136/ard.2005.035733 Conclusions: Reduced uptake of apoptotic
cells by MDM from patients with SLE is not an intrinsic defect but
is serum dependent and associated with decreased levels of C1q, C4,
and C3. |
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|
SLE, atherosclerosis and cardiovascular disease |
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J Intern Med. 2005 Jun;257(6):485-95 |
| |
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Stress Hormone Enables Lupus Antibodies to Alter Behavior, Damage
Cognition |
|
|
Lupus Research Institute (LRI) Funds Initial
Findings |
| |
|
Subacute cutaneous lupus erythematosus (SCLE) presenting in
childhood |
|
|
Vandana Mehta Rai MD, and C Balachandran MD
Dermatology Online Journal: 11 (2): 27 Department of Skin and
Sexually Transmitted Diseases, Kasturba Medical College,Manipal
Karnataka. vandanamht@yahoo.com |
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|
Systemic lupus erythematosus complicated by antiphospholipid
antibody syndrome |
|
|
BMJ 1997;314:1349 (3 May) |
| |
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Systemic Lupus Erythematosus Evolving into Rheumatoid Arthritis |
|
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J Rheumatol 2006;33:188-90 |
| |
|
Systemic lupus erythematosus with generalized chronic cutaneous
(discoid) lupus erythematosus |
|
|
Chicky Dadlani MD, Melissa Pulitzer MD, and
Stephen D Prystowsky MD. Dermatology Online Journal 14 (5): 5.
Department of Dermatology, New York University. |
| |
|
Systemic lupus erythematosus with optical neuromyelitis (Devic's
syndrome). A case with a 35-year follow-up. |
|
|
Rev Rhum Engl Ed. 1999 Feb;66(2):102-5. Optical
neuromyelitis or Devic's syndrome is a very uncommon neurological
manifestation of systemic lupus erythematosus. It is also associated
with antiphospholipid antibodies, limited responsiveness to
glucocorticoid treatment and a poor prognosis. We report the case of
a female systemic lupus erythematosus patient who developed
recurrent flares of optical neuritis and transverse myelitis. These
flares consistently responded to glucocorticoid therapy. Despite the
absence of overt anticardiolipin antibodies in the course of the
disease, long-term anticoagulant therapy has been introduced with
positive results. Treatments are usually of limited efficacy in
Devic's syndrome. In our patient, however, aggressive glucocorticoid
treatment resulted in prolonged survival. |
| |
|
The Effect of Menopause on Disease Activity in Systemic Lupus
Erythematosus |
|
|
First Release Sept 15 2006; J Rheumatol
2006;33:2192-8. Conclusion. Although premenopausal women with SLE
have more disease activity than postmenopausal women with SLE, we
have shown that there is a constant rate of improvement over time,
be it in the premenopause, across the menopause, or postmenopause.
This improvement is not due to change in menopausal status. Thus
clinicians should not be anticipating the postmenopausal era in a
patient's course as a period of natural disease improvement. |
| |
|
The Pathogenesis of Systemic Lupus Erythematosus |
|
|
Orthopaedic Nursing; March/April 2006; Volume 25
Number 2; Pages 140 - 145 |
| |
|
The Pharmacist’s Role in the Treatment of Systemic Lupus
Erythematosus |
|
|
US Pharm. 2006;5:39-48. Due to the broad clinical
and immunologic manifestations and varying symptoms of SLE, the
disease should be suspected in patients who present with clinical
symptoms affecting two or more of the organ systems listed in table
1.1 Diagnosis of SLE can be challenging because patients are prone
to unpredictable exacerbations, remissions, and conditions that can
mimic disease flares. Therefore, it is important to note that no
single test can determine whether a person has SLE. Diagnosis is
based on characteristic clinical features and laboratory criteria.6
The revised 1982 American College of Rheumatology (ACR) criteria for
classification of SLE requires the presence of at least four of 11
conditions at any time during a patient's medical history (table
2).13,14 The ACR classification criteria are the most widely used to
confirm and categorize patients with a diagnosis of SLE. Since these
criteria also classify patients for clinical research studies and
often lack sensitivity to milder forms of SLE, the ACR criteria may
be less accurate in patients with mild disease.6,15 Consequently,
the ACR criteria should not be used solely to exclude or confirm a
diagnosis of SLE. |
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Top of Page |
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Medic Alert Information
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|
*Medic Alert
(USA) |
|
|
HIGHLY recommended! This jewerly could save your
life! |
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|
Medic Alert for
Canada |
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|
| |
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Medic Alert
Foundation (Australia) |
|
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Australia |
| |
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The Med
Scope |
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AS SEEN ON THE "NBC TODAY SHOW", CBS & FOX NEWS |
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Top of Page |
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Medication Information - *General
|
|
Center for Drug Safety |
|
|
The Center for Drug Safety is a medical ASP
(Application Service Provider) designed to bring valuable and even
life saving data to patients, doctors, clinics, pharmacies, and
hospitals to ensure that medications are taken properly, safely and
in a manner insuring the best possible results from the treatment. |
| |
|
Check Interactions - DrugDigest |
|
|
Check potential interactions between two or more
drugs. |
| |
|
Common Misconceptions About Quackery |
|
|
Although most Americans are harmed by quackery,
few perceive it as a serious problem and even fewer are interested
in trying to do anything about it. Many misconceptions appear to
contribute to this situation. This article was revised on August 30,
1999. |
| |
|
Consumer Education: Generic Drugs |
|
|
Generic drugs are safe, effective and FDA
approved. Generic drugs account for about 50 percent of all
prescription drug purchases in the United States, therefore,
consumers should be well informed and confident when taking generic
drug products. |
| |
|
Consumers Can Prevent Medication Errors |
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| |
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Discovery Health: Drug Reference |
|
|
Has an interaction checker. |
| |
|
Drug Digest |
|
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|
| |
|
Drug Interactions |
|
|
This Guide helps you to find out if drugs
interact with each other or interact with food. |
| |
|
Drug Library |
|
|
Whether it's Prozac or aspirin, Pepcid or
echinacea, DrugDigest reviews drugs, vitamins, and herbs to tell you
how to take medicine appropriately, what the product should and
shouldn't do for you, and the scientific evidence that advises
physicians and pharmacists on when to recommend these products. |
| |
|
Drugs and Breast Milk Interactions Chart |
|
|
Revised in October 2005 |
| |
|
FDA Vitamin K List |
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| |
|
Focus on
Medications Website |
|
|
|
| |
|
Hormonal Methods |
|
|
There are many methods of hormonal contraception,
the most popular of which is the combination birth control pill. In
addition to the pill, however, there are a number of exciting new
options of hormonal contraception, which continue to be introduced
almost annually. This is an area where new methods and techniques
are constantly appearing, and it is difficult to constantly keep up
to date with all of our information. But we will try to always
present you with as much knowledge as we have, and we will try to
update as often as necessary! |
| |
|
How Quackery Sells |
|
|
Modern health quacks are supersalesmen. They play
on fear. They cater to hope. And once they have you, they'll keep
you coming back for more . . . and more . . . and more. Seldom do
their victims realize how often or how skillfully they are cheated.
Does the mother who feels good as she hands her child a vitamin
think to ask herself whether he really needs it? Do subscribers to
"health food" publications realize that articles are slanted to
stimulate business for their advertisers? Not usually. |
| |
|
Hydroxychloroquine Retinopathy in Lupus |
|
|
July 30, 2003. Susan E. Marren, O.D., F.A.A.O.
From Lupus News Winter 2001, Vol. 21, No. 4 |
| |
|
Institute
for Safe Medication Practices (ISMP) |
|
|
The Institute for Safe Medication Practices
(ISMP), based in suburban Philadelphia, is the nation’s only 501c
(3) nonprofit organization devoted entirely to medication error
prevention and safe medication use. ISMP represents over 30 years of
experience in helping healthcare practitioners keep patients safe,
and continues to lead efforts to improve the medication use process.
The organization is known and respected worldwide as the premier
resource for impartial, timely, and accurate medication safety
information. |
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|
INTERACTIONS LIST |
|
|
Warfarin Institute of America |
| |
|
Medications That Can Cause Hairloss |
|
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| |
|
More Ploys That May Fool You |
|
|
"Alternative"" promoters are reaching people
emotionally. What sells is not the quality of their products, but
the ability to influence their audience. Their basic strategies are
to promise the moon and knock the "competition." To one and all,
they promise better health and a longer life. They offer solutions
for virtually every health problem, including some they have
invented. To those in pain, they promise relief. To the incurable,
they offer hope. To the nutrition-conscious, they say, "Make sure
you have enough." To a public worried about pollution, they say,
"Buy natural." For ailments amenable to scientific health care, they
offer "safer nontoxic alternatives." And they have an arsenal of
ploys for defending themselves against criticism. To gain your
allegiance it is not necessary to persuade you that all of the
statements below are true. Just one may be enough to hook you. This
article was revised on December 26, 2002. |
| |
|
Quackwatch, Inc. |
|
|
Quackwatch, Inc., which was a member of Consumer
Federation of America from 1973 through 2003, is a nonprofit
corporation whose purpose is to combat health-related frauds, myths,
fads, fallacies, and misconduct. Its primary focus is on
quackery-related information that is difficult or impossible to get
elsewhere. Founded by Dr. Stephen Barrett in 1969 as the Lehigh
Valley Committee Against Health Fraud, it was incorporated in 1970.
In 1997, it assumed its current name and began developing a
worldwide network of volunteers and expert advisors. |
| |
|
Quick Tips—When Getting a Prescription |
|
|
AHRQ Publication No. 01-0040c, May 2002. Agency
for Healthcare Research and Quality, Rockville, MD. |
| |
|
Screening for Hydroxychloroquine Retinopathy |
|
|
Approved by Committee on Rheumatologic Care:
02/22/06; 01/11/03; Approved by the Board of Directors: May 2006;
03/07/03 |
| |
|
Talking with Patients About Generic Medications |
|
|
U.S. Pharmacist Vol. No: 32:6 Posted: 6/19/2007.
Conclusion: Misconceptions and misunderstandings about generic drugs
are not unusual. When pharmacists engage patients in a dialogue
about their hesitation to take a generic, the pharmacist has an
opportunity to assist the patient with selecting the most
cost-effective medication regimen. When their concerns are respected
and their issues are addressed, patients are more likely to listen
to information that will help them make an informed decision about
generic utilization. This can result in savings to the patient and
the health care system. |
| |
|
THE USE OF VITAMIN K |
|
|
Warfarin Institute of America To Reverse an
Elevated INR |
| |
|
Tips for Using Medicines Wisely |
|
|
Medicines can be lifesavers. They can cure or
control diseases. But if you use them the wrong way, they can be
dangerous. Working together with your doctor can help you avoid
problems. Follow the suggestions below for safe medicine use.
Copyright © 2007 American Academy of Family Physicians. |
| |
|
Twenty-Five Ways to Spot Quacks and Vitamin Pushers |
|
|
How can food quacks and other vitamin pushers be
recognized? Here are 25 signs that should arouse suspicion. This
article was revised on July 29, 2004. |
| |
|
Using Meds Wisely |
|
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|
| |
|
Vulnerability to Quackery |
|
|
Despite the advanced state of medical science,
many people with health problems turn to dubious methods. Faced with
the prospect of chronic suffering, deformity, or death, many
individuals are tempted to try anything that offers relief or hope.
The terminally ill, the elderly, and various cultural minorities are
especially vulnerable to health frauds and quackery. Many
intelligent and well-educated individuals resort to worthless
methods procedures with the belief that anything is better than
nothing. This article was revised on January 20, 2005. |
| |
|
What's the Harm? |
|
|
We are all confronted with new information daily.
It comes to us via newspapers, radio, television, websites,
conversation, advertising and so on. Sometimes it seems like a
deluge. Not all information is created equal. Some of it is correct.
Some of it is incorrect. Some of it is carefully balanced. Some of
it is heavily biased. Some of it is just plain crazy. It is vital in
the midst of this deluge that each of us be able to sort through all
of this, keeping the useful information and discarding the rest.
This requires the skill of critical thinking. Unfortunately, this is
a skill that is often neglected in schools. This site is designed to
make a point about the danger of not thinking critically. Namely
that you can easily be injured or killed by neglecting this
important skill. We have collected the stories of over 120,000
people who have been injured or killed as a result of someone not
thinking critically. We do this not to make light of their plight.
Quite the opposite. We want to honor their memory and learn from
their stories. We also wish to call attention to the types of
misinformation which have caused this sort of harm. On the topics
page you will see a number of popular topics that that are being
promoted via misinformation. Many of them have no basis in truth at
all. A few are based in reality, but veer off into troublesome
areas. We all need to think more critically about these topics, and
take great care when we encounter them. Many proponents of these
things will claim they are harmless. We aim to show that they are
decidedly not. Please check out the list of topics and read what
interests you. |
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Top of Page |
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Medication Information - *Prescription Assistance
|
|
Can Your Patients Afford the Medications You Prescribe? |
|
|
Patient adherence may depend on the answer to
this question, so it must be asked. |
| |
|
Free Medicine Foundation |
|
|
Need help paying for your medicine? Help is here
for you. Established by volunteers, Free Medicine Foundation has
helped countless families across the nation completely eliminate or
substantially reduce their prescription drug bills. |
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Free
Meds and Solutions |
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Our Focus at Free Meds and Solutions is to
provide you and your loved ones with programs that will save or
eliminate prescription medicine costs ,as well as a number of
associated assistance programs. Our site is designed to assist you
in accessing the 100’s of Patient Assistant Programs. We provide the
most up-to-date information, qualifying criteria, applications and
detailed instructions for these programs. We are available via email
or our toll-free number with quick responses to any question that
you or your Physician may have. |
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How to Spot a "Quacky" Web Site |
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The best way to avoid being quacked is to reject
quackery's promoters. Each item listed below signifies that a Web
site is not a trustworthy information source. The hyperlinks will
take you to articles on Quackwatch that explain why. The same
criteria can be used to identify untrustworthy books, talk-show
guests, etc. This page was revised on September 6, 2006 |
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I-SaveRx |
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Developed by Governor Blagojevich, I-SaveRx is
available and open to all Illinois, Wisconsin, Kansas, Missouri and
Vermont residents. The I-SaveRx program offers a safe, simple and
affordable way to purchase the medication refills you need - at
savings of up to 80%! |
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Internet Drug Coupons.com |
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FREE Hundreds of coupons for prescription drugs,
non-prescription drugs, and medicines for pets. More coupons than
any similar site! Note: No sign-ins; free service; you do not have
to pay anything to use this site. All we do is provide you with
links to the coupons and advice on how to obtain them. |
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Lovenox Reimbursement Services & Patient Assistance Program |
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Eligibility: This program is designed to identify
if the patient is eligible for Lovenox through private insurance
coverage, individual medication programs, and or government-funded
sources. Aventis will provide Lovenox free of charge under the
following qualifications. Participants must be U.S. residents, their
annual household income must fall below the Aventis Poverty
Guidelines, and they must have no insurance coverage for Lovenox.
This program is available for outpatients only. Please also see:
https://www.pparx.org/ReviewResults.php# |
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NeedyMeds.com |
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This site is designed to provide information
about patient assistance programs which provide no cost prescription
medications to eligible participants. |
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OPTIMIZERx |
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OPTIMIZERx offers you special savings, free
trials & support programs to help you better afford & optimize
results for the medicines & healthcare products you need. |
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Partnership for Prescription Assistance |
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*USE THIS LINK* (Copy & Paste):
https://www.pparx.org/Intro.php The Partnership for Prescription
Assistance brings together America’s pharmaceutical companies,
doctors, other health care providers, patient advocacy organizations
and community groups to help qualifying patients who lack
prescription coverage get the medicines they need through the public
or private program that’s right for them. Many will get them free or
nearly free. Its mission is to increase awareness of patient
assistance programs and boost enrollment of those who are eligible.
Through this site, the Partnership for Prescription Assistance
offers a single point of access to more than 275 public and private
patient assistance programs, including more than 150 programs
offered by pharmaceutical companies. To access the Partnership for
Prescription Assistance by phone, you can call toll-free,
1-888-4PPA-NOW (1-888-477-2669). |
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Patient Advocate Foundation's Co-Pay Relief (CPR) Program |
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Patient Advocate Foundation's Co-Pay Relief (CPR)
Program provides direct co-payment assistance for pharmaceutical
products to insured Americans who financially and medically qualify.
We are pleased to announce that beginning on January 1, 2006 CPR
will begin welcoming new Medicare Part D beneficiaries who require
assistance with their pharmaceutical co-payments. The Program offers
personal service to all patients through the use of CPR call
counselors; personally guiding patients through the simple
enrollment process. |
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Patient Services
Incorporated |
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PSI is committed to assisting persons with
chronic medical illnesses in accessing health insurance and pharmacy
co-payment assistance. Developed in 1989, PSI is a non-profit
charitable organization, primarily dedicated to subsidizing the high
cost of health insurance premiums and pharmacy co-payments for
persons with specific chronic illnesses and rare disorders. Families
requiring assistance in maintaining the high cost of their health
insurance premiums or co-payments are offered assistance based upon
the severity of medical and financial need. PSI offers a "safety
net" for persons who have expensive chronic illnesses and for those
persons who "fall through the financial assistance cracks". |
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Prescription Drug Resource Center - Order Drugs from Canada |
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Prescription Drug Resource Center - Other Resources |
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Rx Outreach |
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Rx Outreach is an easy and affordable way for
people of all ages to get medicines they need. Through this program,
people who qualify financially can get more than 55 generic
medications that treat a wide range of conditions including
diabetes, asthma, heart disease, and depression. People may take
advantage of the program even if they receive medicines through
another discount program. The program is available to individuals
and families with incomes of up to 250 percent of the federal
poverty level. For a family of four, this figure is about $48,000
per year. |
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RxAssist |
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RxAssist, created by Volunteers in Health Care,
provides physicians and other health care providers with the
information you need to access the pharmaceutical companies’ patient
assistance programs. |
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RxHope.com |
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RxHope is the only patient assistance Internet
initiative financially supported by PhRMA (Pharmaceutical and
Research Manufacturers of America) and participating pharmaceutical
companies. RxHope began as a grassroots effort of the Patient
Assistance Managers and Directors of the PhRMA-member companies and
has grown into the leading Internet-based patient assistance and
sampling web portal in the pharmaceutical industry. Each patient
assistance request form has been custom-designed to the
pharmaceutical company's rules engine. RXHope removes the time and
costs of these programs by web-enabling labor-intensive paperwork
onto the physician's computer. RxHope is an independent company, and
is not affiliated with third parties who may provide patients with
no-cost or low-cost medications. Those third parties do not endorse
the content or processes used on this website, including our
information collection or data storage processes. |
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Saving on Prescriptions |
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Target $4 Presciptions List |
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The
Medicine Program.com |
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Disclaimer: This program is not a prescription
insurance policy. This program provides discounts at certain
participating pharmacies for services. This plan does not make
payments directly to the providers of health services. Program
members are obligated to pay for all health care services but will
receive a discount from those health care providers who have
contracted with the discount plan organization. |
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Walmart $4 Drug List |
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