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Doctor Information
|
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*APS
Doctor List - *USA |
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|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
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|
*APS Doctor List - Canada |
|
|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
| |
|
*APS Doctor List - Other Countries |
|
|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
| |
|
*APS Doctor List - UK |
|
|
compiled by the APS Foundation of America, Inc.
The APSFA does not endorse any of these doctors, they were simply
suggested to us by others. Please be sure to call the office to
ensure that the doctor will take your health insurance and is
accepting new patients. |
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ACAM Find A Doctor |
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|
This database lists members on record of the
American College for Advancement in Medicine. Listing in this
database does not constitute a recommendation by ACAM or the APSFA. |
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Agency for Healthcare Research and Quality |
|
|
Tips on choosing a quality health provider, check
out this guide. |
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Antiphospholipid Antibodies by Sr. Stephan Moll (Q/A) |
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|
Q:"I've been diagnosed with anticardiolipin
antibody syndrome. I'm also a prothrombin 20210A heterozygote, and
have elevated homocysteine levels. Following several clots and a
stroke, my local health care providers are interested in getting me
seen by folks with more expertise/experience. Can you recommend
where we might turn?Is there an anticardiolipin expert here in the
US? Is there a center doing research or clinical trials in which I
might participate?" |
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Boston Hemophilia Center Staff Directory |
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Consumers'
Checkbook |
|
|
A nonprofit organization founded in 1974 with the
help of funding from the U.S. Office of Consumer Affairs, that
publishes market data on physicians, hospitals and health plans. |
| |
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DoctorDirectory.com |
|
|
Since 1996, DoctorDirectory.com has been the
leading independent online directory for finding a doctor by
specialty. Every year there are approximately 900 million physician
and patient appointments in the United States. Over 100 million of
those annual physician and patient appointments are first time
appointments, and over 60 million of those happen without a referral
from another physician or health plan. DoctorDirectory.com is a free
service to doctors and other medical professionals and their
prospective patients. DoctorDirectory.com provides physicians with
the following; 1) patients, 2) cash for research, 3) online samples,
4) practice management advice, and 5) many other services to help
their practice be successful. DoctorDirectory.com serves the world’s
leading pharmaceutical prescription drug manufacturing companies
with the following interactive Rx brand marketing solutions; Market
Research, eSampling (online samples), eDetailing (online details),
physician and patient messaging and online advertising targeted by
ailment or specialty. |
| |
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DoctorFinder through the American Medical Association |
|
|
DoctorFinder provides you with basic professional
information on virtually every licensed physician in the United
States. This includes more than 690,000 doctors. AMA member
physicians are offered an expanded listing that contains additional
information such as office hours, accepted insurance providers,
educational history and other helpful information. |
| |
|
Find a
Doctor on Book of Doctors - Ratings Reviews Free Doctor Listings
Directory |
|
|
Read what patients have to say about them on Book
of Doctors. Find a doctor in any speciality through our doctor
directory and read detailed patient reviews and ratings. Our doctor
listings provide as much information as possible to new patients
before they make their important health decision. Along with
detailed office information (hours, insurance plans, medicare,
education, certifications, etc.), visitors can find reviews,
recommendations or ratings about each doctor and submit new ratings
as well. Book of Doctors directory contains thousands of doctors and
growing daily so check back again if you don't find a doctor that
meets your needs. Please visit our sponsors to help support our free
directory (Watch Pavilion & Healio Health) |
| |
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Find a doctor using Yahoo |
|
|
Search by location, specialty, name, insurance,
or hospital |
| |
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Find a
Hematologist |
|
|
Find a Hematologist is a new service offered by
the American Society of Hematology (ASH) for both patients looking
for hematologists in their community and medical professionals who
want to make referrals. Users can search by name, location,
specialty, or clinical interest, and will be provided with contact
information for hematologists meeting the search criteria. |
| |
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Find
a Provider |
|
|
The Centers for Disease Control and Prevention
supports a network of specialized health-care centers to prevent and
reduce complications experienced by persons with certain hereditary
blood disorders. |
| |
|
Find your
Doctor. Know your Doctor. |
|
|
|
| |
|
Geographic Membership Directory from the American College of
Rheumatology |
|
|
This compilation a proprietary product of the
American College of Rheumatology. The contents of our online
directory may not, in whole or in part, be reproduced, copied,
disseminated, entered into a computer database, or otherwise
utilized, in any form or manner or by any means, except for the
user’s individual, personal and confidential reference. You do not
have permission to make any copies of these lists or to contact more
than one doctor at a time via mass mailings, e-mail or fax
broadcasting, or telephone solicitation. Mailing lists are available
from the ACR for one-time use for purposes conducive to our mission. |
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Health
Pages (Find a Doctor) |
|
|
Health Pages is an online consumer health care
service. We publish reader-friendly information on general health
care topics and community-specific comparative information on
physicians, hospitals, allied health professionals and health plans.
Consumers can search our national database of over 500,000
physicians and compare doctors in any specialty according to their
experience, hospital affiliations, office services and fees. Health
Pages also incorporates the provider directories of over 300 managed
care plans into our physician superdirectory, which allows consumers
to determine what plans each doctor is affiliated with. The library
of articles on such topics as prostate cancer, managed care, Medigap
insurance policies, weight loss centers or maternity care are
applicable nationwide. What differs from city to city is the
comparative provider information. |
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HealthGrades |
|
|
A publicly traded company that rates hospitals,
physicians and nursing homes, offers a free, searchable database
that allows consumers to see how hospitals stack up. |
| |
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Hospital Compare |
|
|
This tool provides you with information on how
well the hospitals in your area care for all their adult patients
with certain medical conditions. This information will help you
compare the quality of care hospitals provide. Hospital Compare was
created through the efforts of the Centers for Medicare and Medicaid
Services (CMS) and organizations that represent hospitals, doctors,
employers, accrediting organizations, other Federal agencies and the
public. Talk to your doctor about this information to help you, your
family and your friends make your best hospital care decisions. |
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Joint
Commission on Accreditation of Healthcare Organizations |
|
|
Consumers can use to compare hospitals on quality
and safety measures. |
| |
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NIH Pediatric Rheumatology Clinic |
|
|
The NIH Pediatric Rheumatology Clinic is located
at: The National Institutes of Health Warren Grant Magnuson Clinical
Center 9000 Rockville Pike 10 Center Drive Building 10, Outpatient
13 Bethesda, MD 20892 |
| |
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Physician Credentials: How Can I Check Them? |
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RateMDs.com -
Doctor Ratings and Reviews |
|
|
RateMDs.com allows patients to rate and read
about their doctors and dentists. This is a fairly new website, so
please add your doctors and rate them! |
| |
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Recommended Doctors |
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| |
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Second opinion counts for a lot |
|
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© Copyright 2006 USA TODAY |
| |
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Sites for Checking Health-Related Credentials |
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This page was revised on January 31, 2005. |
| |
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SMFM Physician Locator |
|
|
The Physician Locator tool allows you to search
our database for members of the Society for Maternal-Fetal Medicine.
Results of the search will be based on the parameters that you enter
into the the form below. There is agreement you must accept before
using it. |
| |
|
Symptom Checker |
|
|
What's causing your foot pain? Why does your
child's throat hurt? And what should you do about it? Use this guide
to discover the most common causes of the most common symptoms. |
| |
|
WebMD Physician Directory |
|
|
The WebMD Physician Directory is compiled and
regularly updated by The Little Blue BookTM, a WebMD company. What's
more, all information in the directory is confirmed directly with
the source -- the doctors themselves. The award-winning Little Blue
Book is well-known in the medical industry for its accurate,
up-to-date physician information. |
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Top of Page |
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General Information
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|
*APS Foundation of America, Inc Cafe Press Gear |
|
|
100% of the profits from these products will go
to the APS Foundation of America, Inc. APS Stands for
Antiphospholipid Antibody Syndrome, which is a blood disorder that
causes blood clots, strokes in young people and multiple
miscarriages in women. The APS Foundation of America, Inc. is
dedicated to fostering and facilitating joint efforts in the areas
of education, public awareness, research and patient services in an
effective and ethical manner. Thanks for looking! Please see our two
other cafe press sites at www.cafepress.com/lupusaps and
www.cafepress.com/thrombophilia |
| |
|
Acute neurologic symptoms—TIA, migraine, or something else? |
|
|
What diagnostic studies need your immediate
attention? What is the patient's short-term stroke risk? These
experts outline a rational approach to this often underestimated
emergency. |
| |
|
American Autoimmune Related Diseases Association |
|
|
The American Autoimmune Related Diseases
Association is dedicated to the eradication of autoimmune diseases
and the alleviation of suffering and the socioeconomic impact of
autoimmunity through fostering and facilitating collaboration in the
areas of education, research, and patient services in an effective,
ethical and efficient manner. |
| |
|
American Society of Hematology Patient Resources |
|
|
ASH provides a wide variety of information and
resources for patients with blood disorders, such as links to
patient support groups, free access to Hematology (containing
current disease-specific information), and a Find a Hematologist
feature to help match patients with practicing hematologists in
their area. |
| |
|
Anxiety and Panic: Getting Control over Your Feelings |
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|
Anxiety can be a normal "alarm system" alerting
you to danger. Your heart beats fast. Your palms get sweaty. Your
mind races. Sometimes anxiety can give you energy to get things
done. But anxiety can get out of control and make you feel afraid
for no reason. Copyright © 2006 American Academy of Family
Physicians. |
| |
|
Blood & Marrow
Transplant Information Network (BMT InfoNet) |
|
|
Blood & Marrow Transplant Information Network
(BMT InfoNet) is working with staff at the National Cancer Institute
to identify the greatest challenges facing patients who have, or
have had, chronic graft-versus-host disease (GVHD). |
| |
|
Caring for a painful venous leg ulcer |
|
|
Hanne Vogensen presents a case study which
outlines the care of a Danish leg ulcer patient. Hanne Vogensen, RN
is a Tissue Viability Specialist, Bispebjerg Hospital, Copenhagen,
Denmark. Article accepted for publication: June 2006 |
| |
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Choices You Must Make to Live Successfully with Chronic Illness |
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|
Written by: Lisa Copen |
| |
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Deciphering Medspeak |
|
|
Like millions of Americans, you have probably
read a newspaper or magazine article, tuned into a radio or
television program, or searched the Internet to find answers to
health questions. If so, you have probably encountered "medspeak,"
the specialized language of health professionals. The Medical
Library Association has developed "Deciphering Medspeak" to help you
translate common "medspeak" terms. You'll also find some tips on how
to identify quality health care information on the Internet. |
| |
|
Depression: What You Should Know |
|
|
When doctors talk about depression, they mean the
medical illness called major depression. Someone with major
depression has symptoms like those listed in the box below nearly
every day, all day, for two weeks or longer. If you're depressed,
you may also have headaches, other aches and pains, stomach
problems, and problems with sex. An older person with depression may
feel confused or have trouble understanding simple requests.
Copyright © 2006 American Academy of Family Physicians. |
| |
|
Does
your doctor's lingo have you in a tizzy? |
|
|
By Dr. Judith Reichman “Today” show contributor
Updated: 1:08 p.m. ET Sept. 20, 2005 |
| |
|
Emotional Health: What You Should Know |
|
|
People with good emotional health are in control
of their thoughts, feelings, and the way they act. They feel good
about themselves and have good relationships. They can keep problems
under control. It's important to remember that even people with good
emotional health can sometimes have emotional problems or mental
illness. But people with good emotional health have learned how to
cope with stress and problems. Copyright © 2006 American Academy of
Family Physicians. |
| |
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End-of-Life Choices and Compassion In Dying |
|
|
Compassion & Choices maintains the mission of
improving care and choices at the end of life. Our combined strength
ideally positions us to make the greatest strides yet in our quest. |
| |
|
Frantic patients, lonely decisions on treatment |
|
|
The New York Times, MONDAY, AUGUST 15, 2005 |
| |
|
HealingWell.com |
|
|
Articles, news, information, video webcasts,
message forums and chat rooms, email, books, resource directory and
more. |
| |
|
healthfinder®
- your guide to reliable health information |
|
|
healthfinder® is an award-winning Federal Web
site for consumers, developed by the U.S. Department of Health and
Human Services together with other Federal agencies. Since 1997,
healthfinder® has been recognized as a key resource for finding the
best government and nonprofit health and human services information
on the Internet. healthfinder® links to carefully selected
information and Web sites from over 1,500 health-related
organizations. |
| |
|
How To Protect Yourself Against Lyme Disease |
|
|
Lyme disease is the most common tick-borne
disorder in the United States. Lyme disease can affect the joints,
nervous system, heart, skin, and eyes. |
| |
|
Influenza Symptoms, Protection, and What to Do If You Get Sick |
|
|
Page last modified January 14, 2006 |
| |
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Is Your Problem Brain Fog or Alzheimer's Disease? |
|
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|
| |
|
MedlinePlus |
|
|
MedlinePlus will direct you to information to
help answer health questions. MedlinePlus brings together
authoritative information from NLM, the National Institutes of
Health (NIH), and other government agencies and health-related
organizations. Preformulated MEDLINE searches are included in
MedlinePlus and give easy access to medical journal articles.
MedlinePlus also has extensive information about drugs, an
illustrated medical encyclopedia, interactive patient tutorials, and
latest health news. |
| |
|
MedSpeak Glossary of Terms |
|
|
Click on MedSpeak. The Medical Library
Association has developed "Deciphering Medspeak" to help you
translate common "medspeak" terms. You'll also find some tips on how
to identify quality health care information on the Internet. |
| |
|
National
Bone Marrow Transplant Link |
|
|
The nbmtLink is a non-profit organization
specifically serving stem cell transplant (SCT) patients, their
caregivers, families, and health professionals. In 1992, the
nbmtLink was founded by those who had experienced the gap in
information and support services for SCT patients and were inspired
to establish an organization dedicated to meet these needs. |
| |
|
National Center
for Health Statistics |
|
|
Welcome to the National Center for Health
Statistics' Web site, a rich source of information about America’s
health. As the Nation’s principal health statistics agency, we
compile statistical information to guide actions and policies to
improve the health of our people. We are a unique public resource
for health information–-a critical element of public health and
health policy. |
| |
|
National
Women's Health Resource Center (NWHRC) |
|
|
The not-for-profit National Women's Health
Resource Center (NWHRC) is the leading independent health
information source for women. NWHRC develops and distributes
up-to-date and objective women's health information based on the
latest advances in medical research and practice. |
| |
|
Next Steps After Your Diagnosis: Finding Information and Support |
|
|
Next Steps After Your Diagnosis offers general
advice for people with almost any disease or condition. And it has
tips to help you learn more about your specific problem and how it
can be treated. |
| |
|
Oh, by the way...why am I losing my hair? |
|
|
May 1, 2006. By: Sharon T. Phelan, MD.
Contemporary OB/GYN Registration Required |
| |
|
Quick Tips—When Getting Medical Tests |
|
|
AHRQ Publication No. 01-0040b, May 2002. Agency
for Healthcare Research and Quality, Rockville, MD. |
| |
|
Quick Tips—When Talking with Your Doctor |
|
|
AHRQ Publication No. 01-0040a, May 2002. Agency
for Healthcare Research and Quality, Rockville, MD. |
| |
|
Redefining Self Care |
|
|
Written by: Roz Laraway, MS Clinical Therapist,
Franciscan Skemp Healthcare “Here’s the deal. You are made up of a
body, a mind, and a spirit. When any one of these is in turmoil, it
affects the others.” |
| |
|
Search for and Buy APS Books on Amazon.com |
|
|
Search and Buy Books about APS on Amazon.com |
| |
|
Stress: How to Cope with Life's Challenges |
|
|
Stress is caused by the body's instinct to defend
itself. This instinct is good to have in emergencies, such as
getting out of the way of a speeding car. But it can cause physical
problems if it goes on for too long. When you have stress caused by
life's daily challenges, your body has to work overtime, with no
place to put all the extra energy. This can make you feel anxious,
afraid, worried, and uptight. Copyright © 2006 American Academy of
Family Physicians. |
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Striving for Quality Advance Care Planning |
|
|
written by Linda Briggs, RN, MS, MA Associate
Director Respecting Choices and Ethics Consultant |
| |
|
The importance of health literacy |
|
|
Millions of people in the US are unable to
adequately understand basic health information, and the consequences
can be grave |
| |
|
The MAGIC
Foundation |
|
|
The MAGIC Foundation is a national non-profit
organization created to provide support services for the families of
children afflicted with a wide variety of chronic and/or critical
disorders, syndromes and diseases that affect a child’s growth.
Since its inception the Foundation has grown to include support
services for adults who were also impacted by these disorders. |
| |
|
The
World's Healthiest Foods List, A-Z |
|
|
© 2002-2005 The George Mateljan Foundation |
| |
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US
Health and Human Services |
|
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|
| |
|
ValleyRally.com |
|
|
Valley Rally.com is a site that focuses on
achieving success. The inspirational stories of success posted by
our members will help give you the motivation and confidence to
overcome similar struggles in your life. |
| |
|
Vascular Disease Foundation |
|
|
Established in 1998 the Vascular Disease
Foundation (VDF) is the only multidisciplinary national public
501(c)(3) non-profit organization focused on vascular diseases with
the sole purpose of providing public education and improving
awareness about vascular diseases. The mission of the VDF is to
reduce death and disability from vascular diseases and improve
vascular health for all Americans. |
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Venous Access Port Problems |
|
|
Last Updated: July 15, 2001 |
| |
|
WedMD |
|
|
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| |
|
Welcome
to Precision BioLogic |
|
|
In the coagulation lab, you want confidence in
the results you are reporting. You want to do things quickly and get
it right the first time. |
| |
|
Welcome to
Your Support Hosiery Superstore! |
|
|
Information on Support Hose also has some links
to articles related to DVT and pulmonary embolisms. |
| |
|
Women's Conditions Health Center |
|
|
Women's health is an increasingly important field
of medicine. Here you'll find in-depth articles on women's health
issues such as chronic pelvic pain, fibroids, menstrual problems,
and menopause. |
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|
Top of Page |
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Genetic Clotting Problems
|
|
*Factor V Leiden |
|
|
This website is run by a patient who has Factor V
Leiden (FVL). This support site has information on FVL and other
hypercoagulable conditions, but it is worth noting that not all of
the information presented comes from healthcare professionals and
not all information is cited. The APSFA does not have any control
over the content of the FVL website and cannot confirm that all
information provided by it is accurate. |
| |
|
Activated protein C resistance |
|
|
This page was last modified 13:18, 16 August
2006. |
| |
|
Activated Protein C Resistance and Factor V Leiden: A Review |
|
|
Archives of Pathology and Laboratory Medicine:
Vol. 131, No. 6, pp. 866–871. |
| |
|
American College of Medical Genetics Consensus Statement on Factor V
Leiden Mutation Testing |
|
|
Wayne W. Grody, MD, PhD1, John H. Griffin, PhD2,
Annette K. Taylor, MS, PhD3, Bruce R. Korf, MD, PhD4, and John A.
Heit, MD5 (ACMG Factor V Leiden Working Group) © 2001-2005 American
College of Medical Genetics. All rights reserved |
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|
Antithrombin III Deficiency |
|
|
Antithrombin-III deficiency can cause or lead to
thrombosis, a clot forming in a blood vessel. If a clot attached to
a blood vessel wall breaks loose and travels in the bloodstream, it
is called an embolus. An embolus that reaches a blood vessel in the
lungs is called a pulmonary embolism. This type of clot can block
the blood vessel, cut off the oxygen supply to the lung tissue, and,
in some cases, cause death. Article Reviewed: 1999-03-17 |
| |
|
Congenital antithrombin III deficiency |
|
|
Update Date: 10/28/2003 Updated by: Ezra E. W.
Cohen, M.D., Section of Hematology/Oncology, Department of Medicine,
The University of Chicago, Chicago, IL. Review provided by VeriMed
Healthcare Network. |
| |
|
Congenital protein C or S deficiency |
|
|
These inherited disorders of blood coagulation
are caused by deficiency of the Vitamin K-dependent plasma proteins
C or S that are naturally occurring anticoagulants. The disorder
results in an increased tendency for intravascular blood clot
formation. Update Date: 4/15/2005 Updated by: Rita Nanda, MD,
Department of Medicine, Section of Hematology/Oncology, University
of Chicago Medical Center, Chicago, IL. Review provided by VeriMed
Healthcare Network. |
| |
|
Current approaches to the work-up of hypercoagulability:Prothrombin
20210 |
|
|
Information on Factor II G to A
(guainine-to-adenine) gene mutation/genetic predispositions to
thrombosis associated with mutation in the prothrombin gene. |
| |
|
Excess Factor VIII: A Common Cause of Hypercoagulability |
|
|
Abstract Background: Elevations of coagulation
factor VIII have recently been described in significant numbers of
patients with venous thromboembolism (VTE) previously thought to
have had an "idiopathic" event. Three patients from a family
practice are presented with recurrent VTE and increased factor VIII
levels. Method: The case histories and results of laboratory tests
were reviewed. Results: The 3 patients had no other clear
coagulopathy. In 2 of the 3, the increase was confirmed with a
second reading. Conclusions: Factor VIII assay should be considered
in the work-up of idiopathic, recurrent VTE. Long-term
anticoagulation may be appropriate in this setting. |
| |
|
Factor V deficiency |
|
|
Factor V deficiency is an inherited abnormal
blood coagulation disorder caused by a deficiency of the plasma
protein Factor V. |
| |
|
Factor V Leiden |
|
|
Factor V Leiden (sometimes Factor VLeiden) is a
hypercoagulability disorder in which Factor V, one of the
coagulation factors, cannot be deactivated. Factor V Leiden is the
most common hereditary hypercoagulability clotting disorder amongst
Eurasians, possibly affecting up to 5% of the population of the U.S.
It is named after the city Leiden (The Netherlands), where it was
first identified in 1994 by Prof R. Bertina et al. |
| |
|
Factor V Leiden - Cardiology Patient Page |
|
|
Circulation 2003; 107:e94-97. (c) 2003 American
Heart Association, Inc. |
| |
|
Factor V Leiden and Antiphospholipid Antibodies Are Significant Risk
Factors for Ischemic Stroke in Children |
|
|
(Stroke. 2000;31:1283.) © 2000 American Heart
Association, Inc. |
| |
|
Factor V Leiden and Pregnancy Issues Support Board |
|
|
This list is for people who have Factor V Leiden
or similar disorder (such as Inherited or Pregnancy Acquired
Thrombophilia) and are trying to get pregnant, already are pregnant,
or have been pregnant. Affected partners/family members are also
welcome. Within this group, it is not uncommon to have experienced a
pregnancy loss, so members are expected to be sensitive to the
serious nature of this group. This is a list of support, discussion,
and information-sharing. Any challenges or flames will not be
tolerated. Please note that new members are automatically moderated
to reduce list-spamming. This may cause initial posts to be
temporarily delayed in getting sent to the list. |
| |
|
Factor V Leiden thrombophilia |
|
|
Factor V Leiden thrombophilia is an inherited
disorder of blood clotting. Factor V Leiden is the name of a
specific mutation that results in thrombophilia, or an increased
tendency to form abnormal blood clots in blood vessels. People who
have the factor V Leiden mutation are at somewhat higher than
average risk for a type of clot that forms in veins, such as the
deep veins of the legs (deep venous thrombosis), or a clot that
travels through the bloodstream and lodges in the lungs (pulmonary
embolism). |
| |
|
Factor V Leiden Thrombophilia |
|
|
[Hereditary Resistance to Activated Protein C,
Factor V Leiden Mutation] Funded by the NIH • Developed at the
University of Washington, Seattle |
| |
|
Factor V Q506 Mutation (Activated Protein C Resistance) Associated
With Reduced Intrapartum Blood Loss - A Possible Evolutionary
Selection Mechanism |
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| |
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Factor VII deficiency |
|
|
Factor VII deficiency is an inherited disorder
that causes abnormal blood clotting (coagulation), resulting from a
deficiency of the plasma protein factor VII. |
| |
|
Factor X deficiency |
|
|
Factor X deficiency is a disorder that causes
abnormal blood clotting (coagulation), resulting from a shortage of
a plasma protein called factor X. |
| |
|
Factor XII (Hageman factor) deficiency |
|
|
This is an inherited disorder that causes
prolonged clotting (coagulation) of blood in a test tube without a
clinical bleeding tendency, and results from a deficiency of the
plasma protein factor XII. |
| |
|
FDA Approves First Biologic to Treat Rare Clotting Disorder |
|
|
The U.S. Food and Drug Administration (FDA) today
licensed Ceprotin, the first biologic treatment for patients with a
rare genetic defect that can cause a potentially life-threatening
clotting disorder. Ceprotin is made from the plasma of healthy human
blood donors. It is a concentrated form of Protein C, a substance
normally manufactured in the liver that circulates in the plasma in
very small amounts. Protein C plays an important role in controlling
blood coagulation by preventing the formation and growth of blood
clots. |
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Genetic Counseling for Hereditary Thrombophilia |
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Hereditary Blood Disorders, NCBDDD, CDC |
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Hereditary defects in one or more of the clotting
factors can cause the formation of potentially dangerous blood clots
(thrombosis). Approximately 5-8% of the U.S. population has one of
these clotting disorders collectively called thrombophilia, a
propensity for blood clotting in which a genetic defect can be
identified that often results in thrombosis. More than 60,000
Americans die each year from venous thromboembolism; in addition,
nearly half of patients with deep vein clots experience long-term
health consequences that adversely affect their quality of life. |
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HIV infection and stroke: if not protein S deficiency then what
explains the relationship? |
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Journal of Neurology, Neurosurgery, and
Psychiatry 2005;76:1331 |
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Homocyst(e)ine, Diet, and Cardiovascular Diseases - AHA Science
Advisory |
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(Circulation. 1999;99:178-182.) © 1999 American
Heart Association, Inc. |
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Homocysteine and MTHFR Mutations: Relation to Thrombosis and
Coronary Artery Disease |
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(Circulation. 2005;111:e289-e293.) © 2005
American Heart Association, Inc. Elizabeth A. Varga, MS; Amy C.
Sturm, MS; Caron P. Misita, PharmD; Stephan Moll, MD |
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Molecular Genetics of Blood Clotting |
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Summary: David Ginsburg is interested in
understanding the components of the blood-clotting system and how
disturbances in their function lead to human bleeding and
blood-clotting disorders. |
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Protein C Deficiency |
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Protein C deficiency is a genetic trait that
predisposes one to the formation of venous clots. Protein C
deficiency was first described in 1981. |
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Protein C Deficiency : Article by Eleanor S Pollak, MD |
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Protein C deficiency, a deficiency of the
anticoagulant protein C, is associated with a variably increased
risk of thrombosis. In the rare inherited homozygous or compound
heterozygous state, protein C deficiency is associated with severe
life-threatening neonatal purpura fulminans or massive venous
thrombosis. The inherited heterozygous state of protein C deficiency
most frequently is associated with deep venous thrombosis of the
lower limb but also may manifest in other venous locations. A
significant percentage of patients with protein C deficiency remain
asymptomatic. A family history is essential in assessing the
association of a patient's deficiency with the patient's risk of
thrombotic disease. Acquired protein C deficiency occurs in certain
clinical scenarios, but this most often is associated with a
transient predisposing factor. Last Updated: June 30, 2006 |
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Protein S
Deficiency And Thrombophilia |
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Welcome to our web site. Protein S Deficiency
(PSD) is a rare blood disorder that affects just a few thousand
people worldwide. It is one of several known risk factors for
thrombophilia and can increase the risk of blood clots such as Deep
Vein Thrombosis (DVT) and Pulmonary Embolism (PE). |
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Protein S Deficiency And Thrombophilia Chat Room (UK) |
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Protein S deficiency in HIV associated ischaemic stroke: an
epiphenomenon of HIV infection |
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Journal of Neurology, Neurosurgery, and
Psychiatry 2005;76:1455-1456 |
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Prothrombin 20210 |
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Prothrombin is one of the blood clotting factors.
It circulates in the blood and when activated, is converted to
thrombin. Thrombin causes fibrinogen, another clotting factor, to
convert to fibrin strands, which make up part of a clot. |
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Prothrombin 20210 Mutation (Factor II Mutation):Cardiology Patient
Page |
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(Circulation. 2004;110:e15-e18.) © 2004 American
Heart Association, Inc. Elizabeth A. Varga, MS; Stephan Moll, MD |
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Rituxan for Treatment of Idopathic Factor VIII Inhibitors |
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June 2003 Power Point Presentation |
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Selective IgA Deficiency |
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Should one routinely screen for lipoprotein(a)? |
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JOSEPH P. FROLKIS, MD, PhD Sections of Preventive
Cardiology and Preventive Medicine, Department of Preventive
Cardiology and Rehabilitation, Cleveland Clinic |
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Strange inheritance patterns |
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Last Updated: 2/15/2004 |
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The Genetics of FVL, by Jennifer Rosenberg |
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Contributions in design from Jennifer Rosenberg. |
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Von
Willebrands Disease |
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Matt Klimshuk's Homepage |
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Top of Page |
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INR & INR Machines
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*INR Monitoring in Patients with Antiphospholipid Antibodies with
Finger Stick INR Machines. |
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by: Stephan Moll, MD. A superb way to monitor
INRs (International Normalized Ratio) in patients on oral
anticoagulants who do NOT have antiphospholipid antibodies (APLA) is
though use of “point of care instruments”, where the INR is tested
on blood from a finger stick. This method gives fast results and is
used by many physicians’ offices and by some patients at home.
However, in patients with APLA on oral anticoagulants these
instruments may give inaccurate readings. |
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Anticoagulation
Forum |
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"Recognizing the growing importance and
widespread use of antithrombotic therapy for individuals with
thromboembolic disorders, the Forum seeks to develop a network of
professionals committed to this therapeutic modality in order to
exchange information, provide medical education, and pursue
scientific investigation, with the ultimate goals of providing
professional development and enhancing the quality of medical care." |
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Antiphospholipid Antibody Syndrome (APS) - NO to Home INR Machines!! |
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I started this blog to help get the word out that
Home INR machines are NOT safe to use for patients with
Antiphospholipid Antibody Syndrome. If you have APS, please read!
Thanks! |
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CoagCheck
Systems |
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Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
This is for the CoaguChek, CoaguChekS and CoaguCheckXS. Please call
technical support at 800-428-4674 for more information. Those using
this machine should be getting vein draw comparisons at least every
6-8 weeks. |
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CoaguChek & CoaguChek S Strip Insert |
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Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
This is for the CoaguChek & CoaguChekS. Please call technical
support at 800-428-4674 for more information. Those using this
machine should be getting vein draw comparisons at least every 6-8
weeks. |
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CoaguChek XS System - Patient Experience |
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Registration Required to read story. "I called
Roche and expressed my concerns about the reliability of the
machine. They told me that at higher INRs (above 4.0) the machine
becomes less reliable. They also told me that the machine doesn't
work very well for people with Antiphospholipid Antibodies because
these same antibodies are on the test strips! She said that
especially when someone with APS is having a flare up the machine
may not work well due to the high level of antibodies in the blood." |
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CoaguChekXS Strip Insert |
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Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
This is for the new CoaguChekXS. Please call technical support at
800-428-4674 for more information. Those using this machine should
be getting vein draw comparisons at least every 6-8 weeks. |
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Devices for ambulatory and home monitoring of blood pressure,
lipids, coagulation, and weight management, part 2 |
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Am J Health Syst Pharm.2005; 62: 1894-1903. Kelly
L. Scolaro, Pamela L. Stamm and Kimberly Braxton Lloyd Copyright ©
2005 by the American Society of Health-System Pharmacists. |
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Factors That Influence INR system Comparisons |
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List includes Antiphospholipid Antibodies |
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For those inquiring about HOME INR machines... |
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Registration Required to read this patient
experience. "You're putting your life into a machine that is KNOWN
to be wrong with APS patients...think TWICE...THREE times...FOUR
times and Just say NO!" |
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Hemochron Jr. Package Insert |
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Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
Those using this machine should be getting vein draw comparisons at
least every 6-8 weeks. |
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Home
INR Machines and Antiphospholipid Antibodies |
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Home INR machines do not give accurate readings
in about 1/3 rd of patients with antiphospholipid antibodies who are
on warfarin. This is not due to the machine malfunctioning, but
likely due to antibodies interfering with the test method of the
home INR machines. In one third of patients with antiphospholipid
antibodies the INRs read by the home INR machines are unreliable:
(a) they either read too high, compared to INRs tested in a
laboratory from an i.v. stick (reference 2), or (b) the instruments
flash up an error message (reference 1). This inaccuracy is likely
caused by the presence of the antiphospholipid antibodies. Since
antibody levels can fluctuate over time, the instrument may give
accurate readings at times when the antibody levels are low, but
inaccurate ones at times when the levels are higher. This is a
phenomenon not unique to the Coaguchek® instrument, but is also seen
with the ProTime® and the INRatio® instruments (reference 1,2). In
patients who do not have antiphospholipid antibodies the home INR
machines give reliable readings and are a good way to monitor
warfarin therapy (ref. 3). Last Updated: 8/22/06 |
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INR |
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INRatio by Hemosense |
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Representatives & Literature clearly states that
this machine has problems with APS patient and patients with the
Lupus Anticoagulant. Please see:
http://www.hemosense.com/docs/5500317_TechBull108_AntiPhospholipid_RevA.pdf
Those using this machine should be getting vein draw comparisons at
least every 6-8 weeks. |
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INRatio Monitor and Interfering Substances |
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Anti-phospholipid antibodies can disrupt the
phospholipid in the PT reagent that is necessary for the clotting
reaction to occur thus artificially elevating the INR. |
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My
Experience with Home INR Machines |
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Patient's story on her use of a Home INR Machine
and supporting company information. |
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Patient Variables in PT/INR Testing with INRatio |
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Technical Bulliten from HemoSense makers of
INRatio. Clearly states that APS effects its results. |
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Point-of-care testing of the international normalized ratio in
patients with antiphospholipid antibodies. |
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SL Perry, GP Samsa, and TL Ortel Thromb Haemost,
December 1, 2005; 94(6): 1196-202. Antiphospholipid antibodies can
influence the results of clotting tests in a subset of patients,
which can be a major obstacle in monitoring warfarin.The aim was to
determine if point-of-care testing of the International Normalized
Ratio (INR) is influenced by antiphospholipid antibodies. Please
note the manufacture of this machine helped fund this study. |
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Protime
Machine |
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Representatives clearly state that this machine
has problems with APS patients and patients with the Lupus
Anticoagulant. Waiver for patients with APS must be signed. Those
using this machine should be getting vein draw comparisons at least
every 6-8 weeks. |
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ProTime Microcoagulation System Package Insert |
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Literature clearly states that this machine has
problems with APS patient and patients with the Lupus Anticoagulant.
Those using this machine should be getting vein draw comparisons at
least every 6-8 weeks. |
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Questions and Answers: For Use with CoaguChek® Test Strip Urgent
Medical Device Correction (UMDC) 06-266 and Urgent Medical Device
Recall (UMDR) 06-267 |
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11/16/06: CoaguChekS now has a 30% +/- acceptable
standard of deviation. |
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Thoratec Receives FDA Warning Letter, Plans Recall (ProTime) |
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Thoratec’s International Technidyne Corp. (ITC)
division has received an FDA warning letter citing concerns about
its quality systems, specifically those related to certain lots of
its ProTime System anticoagulation monitoring device.....of
incorrect readings of patient blood coagulation levels. |
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Top of Page |
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Loss Information
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American
Child Photographers Charity Guild (ACPCG) |
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A non-profit, volunteer based organization of
child photographers from all over the country who have come together
to form a guild dedicated to children in need and their families. |
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Association for Death Education and Counseling |
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ADEC is one of the oldest interdisciplinary
organizations |
