APS & Related Publications

These are recommended reads on APS. We have also provided links to purchase the ones that are available at Amazon.com.

Click HERE for our top 9 Amazon must reads!

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Books on Antiphospholipid Antibody Syndrome/Hughes

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Positive Options for Antiphospholipid Syndrome (APS): Self-Help and Treatment by Triona Holden; Published in 2003 by Hunter House; ISBN: 0897934091

Description: APS (also known as "sticky blood syndrome") makes the blood clot too easily. It is often the cause of multiple miscarriages and is potentially fatal. Increasingly common, it threatens to become more prevalent than MS and lupus. This book takes an important look at this dangerously under-diagnosed autoimmune disease and provides medical information, case studies, and patient interviews to help the reader learn to cope. [ top ]

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Hughes Syndrome: Patient's Guide by Dr Graham Hughes; Published in 2001 by Springer; ISBN: 1852334576. 

Description: As with any delicate machine, the human body can be profoundly affected by its supply of vital running materials.  Thus, the tendency for the blood to clot excessively has the potential to cut off the oxygen supply to any organ of the body.

In 1983, Dr. Graham Hughes and his team in London described a syndrome and subsequently developed simple blood tests to diagnose the condition.  This syndrome is characterized by thrombosis (both in limbs and internal organs), headaches, memory loss, strokes, and, in pregnant women, placental clotting and recurrent miscarriage. 

The syndrome, now known worldwide as Hughes' Syndrome, or the Antiphospholipid Syndrome, is common – being responsible, for example, for up to 1 in 5 cases of young stroke.  [ top ]

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The Antiphospholipid Syndrome II by Ronald A. Asherson (Editor), Ricard Cervera (Editor), Jean-Charles Piette (Editor), Yehuda Shoenfeld (Editor); Published in 2002 by Elsevier Science Pub Co.; ISBN: 0444509879  

Description:  This book provides the reader with a comprehensive overview of the Antiphospholipid syndrome. One of the most important advances in rheumatology and connective tissue diseases of the last decade. It provides an explanation for many previously undefined conditions with no clear pathogenesis encompassing all subspeculations in internal medicine as well as obstetrics. Clotting problems leading to strokes and myocardial infarctions (in younger people) as well as a large variety of other syndromes such as chorea, hyproadrenalism, pulmonary problems are now being understood.

Univ. of Cape Town, South Africa. Text covers the history and epidemiology of the Antiphospholipid Syndrome, immunology and pathophysiology of the Antiphospholipid Syndrome, clinical features, and management and prognosis. A useful appendix discusses information on the Internet and patient information. NOTE: Elsevier has taken over this title from CRC Press and copyrighting as first ed.  [ top ]

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Clinical Approach to Antiphospholipid Antibodies by Steven R. Levine, Robin L. Brey (Editor); Published in 2000 by Butterworth-Heinemann; ISBN: 0750671777  

Description:  From Book News, Inc. Discusses clinical and mechanistic issues related to vascular disease associated with antiphospholipid antibodies (aPL), identifying both advances and limitations of current knowledge in the field. The topics of the eight chapters are epidemiology of aPL and vascular disease, immunologic properties and anticoagulant activities of aPL, mechanisms of thrombosis and experimental models, cerebrovascular diseases, obstetric complications, the pathology of aPL, treatment of patients with aPL and arterial or venous thromboembolic events, and clinical vignettes.Book News, Inc.®, Portland, OR   [ top ]

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Hughes Syndrome: Antiphospholipid Syndrome by MA Khamashta (Editor); Published in 2006 by Springer; ISBN: 1852338733

Description: A clinical and scientific guide - State of the art textbook for doctors and researchers, with contributions from 57 of the world's leading authorities.

"Hughes Syndrome should be read by anyone who might have a clinical or scientific interest in this condition; Rheumatologists, hematologists, obstetricians and neurologists."

"This highly technical paperback is a superb collection of the very best material on Hughes Syndrome and should be studied by any physician treating Hughes Syndrome patients"    [ top ]

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Antiphospholipid Syndrome - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by Icon Health Publications; Published in 2004 by Icon Health; ISBN: 0497000776

From the Publisher: This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to antiphospholipid syndrome. It also gives extensive lists of bibliographic citations. Finally, it provides information to users on how to update their knowledge using various Internet resources. The book is designed for physicians, medical students preparing for Board examinations, medical researchers, and patients who want to become familiar with research dedicated to antiphospholipid syndrome.

If your time is valuable, this book is for you. First, you will not waste time searching the Internet while missing a lot of relevant information. Second, the book also saves you time indexing and defining entries. Finally, you will not waste time and money printing hundreds of web pages.

Description: In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing. This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so.   [ top ]

Books on Lupus

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Living with Lupus: The Complete Guide – Second Edition, Revised and Updated by Sheldon Paul Blau, MD and Dodi Schultz; Published in 2004 by: Da Capo Press; ISBN: 0738209228 (It can be purchased here: http://www.milupus.org/store.htm or at www.Amazon.com

Description: Completely revised and updated, the definitive guide to maintaining a healthy lifestyle with lupus.  

An estimated 1.4 million Americans, most of them women, suffer from lupus, a chronic auto-immune disease in which the immune system attacks the body. With symptoms ranging from skin rashes to kidney dysfunction, lupus is a complicated and frustrating disease, the cause of which is still unknown. 

In the newly revised Living with Lupus, Sheldon Paul Blau, MD helps patients, their caregivers, and their families and friends navigate this unpredictable disease. With sound, up-to-date advice on how to interpret symptoms, find a physician, choose the right treatments and medications, avoid the environmental factors that may trigger a flare-up, and reduce the risk of complications, Living with Lupus is the essential resource for maintaining a healthy and comfortable lifestyle in spite of lupus. Full of practical suggestions, cutting-edge medical information, and moving personal stories, Living with Lupus offers hope and reassurance.

This book has dedicated a full chapter to Antiphospholipid Antibody Syndrome and pregnancy.   [ top ]

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The Lupus Handbook for Women by Robin Dibner, MD & Carol Colman; Published in 1994 by Simon & Schuster; ISBN: 0671790315

Description:  The Lupus Handbook for Women provides all the information a woman needs to understand the disease, its diagnosis, and the treatment.  It will answer her questions and help her to work with her doctors in managing the disease.

Rheumatologist Dr. Robin J. Dibner, in clear and supportive terms, tells women what they need to know including:

  • What lupus is, how it affects the body, and why women are particularly vulnerable to it (90% of Americans with lupus are women)

  • The three different types of lupus (discoid lupus, systemic lupus erythematosus [SLE], and drug-induced lupus)

  • How to get a correct diagnosis and understand the tests (because the symptoms are often mistaken for those of other illness, it can take three to five years to get a definitive diagnosis)

  •  The pros and cons of the various conventional drugs and therapies

  • What the new, experimental treatments are, whom they are for, and what their risks and benefits are

  • How to use stress control, diet, and exercise to prevent flare-ups and maintain health

  • How to keep lupus form interfering with a normal dating and sex life and with the development of healthy relationships

  • How to have a safe, though high-risk, pregnancy

The Lupus Handbook for women also includes information on the major lupus research centers, support groups, and other sources of help and information.  [ top ]

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Lupus: The Facts by Dr Graham Hughes; Published in 2000 by Oxford University Press; ISBN: 0192631454

Description: Though one of the lesser known illnesses, Lupus affects an enormous number of people worldwide (there are 1 million sufferers in the USA alone), and is far more prevalent than many better known illnesses (such as MS and leukemia). Lupus is a disease of the immune system, resulting from the over-production of antibodies. Typical first symptoms include skin rashes, hair loss, joint swellings, fever; however, it can then go on to start affecting major organs, particularly the kidneys, with a resulting risk to life. It is a disease that predominantly affects young women (between fifteen and forty). In spite of its high incidence, little has been written for the sufferer. Fortunately, the options for the Lupus sufferer have improved markedly in recent years, with the advent of self-help groups, and improved drug treatments. The long-term prognosis is therefore far more favorable now than it has been in the past. As head of the Lupus Research Unit at St Thomas' Hospital, and life president of Lupus UK, Graham Hughes has an unsurpassed knowledge of Lupus. From a world-wide authority on the subject, Lupus: The FACTS provides the sufferer with the information they need, on a range of issues, such as diagnosis, treatment, pregnancy, and diet. Drawn from his years of experience treating patients, Dr Hughes provides the sufferer, and their family and friends, with concise, readable, information on the illness, with a book that emphasizes the immense positive contribution that they can make to improve their situation.   [ top ]

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The Lupus Book: A Guide for Patients and Their Families by Dr. Daniel Wallace; Published in 2000 by Oxford University Press; Rev & Expand edition; ISBN: 0195132815 (It can be purchased here: http://www.milupus.org/store.htm or at www.Amazon.com )

Description:  Dr. Daniel J. Wallace is one of the world's leading authorities on lupus, the co-author of the leading textbook, and an eminent clinician who has treated over 2000 lupus patients, the largest such practice in America. His The Lupus Book, published in 1995, was the first book written by a leading authority specifically for patients. It immediately established itself as the most readable and helpful book on the disease. Now Dr. Wallace has completely revised The Lupus Book, incorporating a wealth of new information. This revised and expanded edition discusses the newest breakthroughs in drug treatments as well as the most recent discoveries in cellular, genetic, and immunological research--all laid out in user-friendly language that any patient could understand. Readers will discover 10 new blood tests your doctor can do, over 30 new drugs introduced since 1995, an extensive table of herbs that can be used for the disorder, and a large section on cognitive therapy and biofeedback. There are new sections on topics such as cell signaling, lupus susceptibility genes, selective cox-2 inhibitors, newer immunosuppressive therapies, and osteoporosis. And as in the first edition, the book provides absolutely lucid answers to such questions as: What causes lupus? How and where is the body affected? Can a woman with lupus have a baby? And how can one manage this disease? There is also a glossary of terms and an appendix listing lupus resource materials. Over a million Americans have lupus and some tens of thousands of patients die every year from the disease. The new edition of The Lupus Book offers these patients and their families a wealth of reliable, up-to-date information that will help them manage the disease and live a happier life.  [ top ]

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Lupus Q &A: Everything You Need to Know by Dr. Robert Lahita and Dr. Robert Philips; Published in 2004 by Avery Publishing Group; ISBN: 1583331964 (It can be purchased here: http://www.milupus.org/store.htm or at www.Amazon.com

Description: A rheumatologist and a psychologist offer an informative and compassionate perspective on coping with lupus for patients and their families

Lupus is a chronic autoimmune disease that is difficult to diagnose, and the symptoms-from achy joints to skin rashes-often mimic those of other diseases. Based on extensive research and clinical experience, Lupus Q&A answers the myriad questions of the more than 1.4 million lupus patients in this country. The book demystifies lupus by explaining diagnosis, symptoms, treatments, medication, and the psychological impact of the disease.  [ top ]

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The Challenges of Lupus by Henrietta Aladjen; Published in 1998 by: Avery Publishing Group; ISBN: 0895298813 (It can be purchased here: http://www.milupus.org/store.htm or at www.Amazon.com )

Description: Author is the founder of the Lupus Foundation of America. Compilation of forty original articles written by experts on the subject of lupus. Explains what lupus is, how it affects people in different facets of life, how it is manifested, diagnosis procedures, and the importance of the doctor-patient relationship. For consumers. Softcover.  [ top ]

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Coping with Lupus: A Practical Guide to Alleviating the Challenges of Systemic Lupus Erythematosus by Dr. Robert H. Phillips; Published in 1984 By: Avery Publishing Group; ISBN: 158333095X (It can be purchased here: http://www.milupus.org/store.htm or at www.Amazon.com

Description: A top-seller in Avery's Coping with a Chronic Illness series (more than 78,000 sold) is now thoroughly revised and updated.

More than sixteen thousand Americans develop lupus each year, according to the Lupus Foundation of America. Once considered a fatal disease of the autoimmune system, current methods of therapy have made deaths from lupus much more uncommon. Many patients now live longer lives while coping with the debilitating symptoms of the disease. This completely revised edition provides informed, compassionate advice about how to choose the right medications and manage the difficult emotions brought on by living with chronic illness.  [ top ]

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Systemic Lupus Erythematosus, Fourth Edition  by Robert G. Lahita; Published in 2004 By: Academic Press; 4 edition (May 12, 2004) ; ISBN: 0124339018  

Editorial Review: From Previous Edition:"This book successfully links basic science with clinical medicine, providing a framework within which to understand this complex disease. As Lahita states in the introduction, 'The history of discovery is now in the log phase of growth.' The third edition of Systemic Lupus Erythematosus conveys the excitement and the breadth of this dynamic field. This volume will be an excellent resource for basic and clinical scientists, as well as for the students of imunology and rheumatology. The chapters are well-referenced and can be read independently- as befits a reference book." -Jane E. Salmon, Weill Medical College, Cornell University, New York, USA (March 2000)   [ top ]

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Lupus (Paperback) by Robert G. Lahita, Phillips; Published in 1997 By: Avery (October 1, 1997); ISBN: 0895298333  

Editorial Review: Systemic lupus erythematosus is a mysterious, hard-to-diagnose disease that affects an estimated two million people in the United States alone. The unpredictable behavior and uncertain course of lupus raise many questions for sufferers of this sometimes devastating disease. Lahita (medicine, Columbia Univ., and chief of rheumatology, St. Luke's-Roosevelt Hospital Ctr., New York) has authored several textbooks on lupus and immune diseases. His coauthor is the director of the "Cope" program for the Long Island/Queens chapter of the Lupus Foundation of America and wrote Coping with Lupus (Avery, 1990). Lahita and Phillips are more than qualified to provide information about lupus, and their writing is clear and their coverage comprehensive. Their question-and-answer format will not be to everyone's taste; however, in combination with the index, it makes finding answers to particular questions quick and easy. Recommended for all patient-education collections.?Stacey Hathaway, Wright State Univ. Libs., Dayton, Ohio
Copyright 1998 Reed Business Information, Inc. 
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Books on Fibromyalgia 

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Making Sense of Fibromyalgia by Dr. Daniel Wallace; Published in 1999 By: Oxford University Press; ISBN: 0195116119 (It can be purchased here: http://www.milupus.org/store.htm or at www.Amazon.com ) 

Description: This year, six million Americans--most of them women--will go to their doctors, complaining of an illness they have no name for. The majority will be turned away or treated for depression; the few who persist will go to an average of four doctors before they receive the correct diagnosis: fibromyalgia.

In Making Sense of Fibromyalgia, noted medical writer Janice Wallace and Dr. Daniel Wallace, a leading expert on this disorder, provide a comprehensive guide--for both patients and professionals--to this little known and poorly understood syndrome. The authors offer detailed information in a clear and accessible style, taking readers through the steps of diagnosis, all the established forms of treatment, and alternative therapies that have yet to be proven effective. Fibromyalgia, they explain, is a pain amplification, brought on by abnormal interactions between hormones, the immune system, neurotransmitters, and the autonomic nervous system. Sometimes the syndrome occurs spontaneously; in most cases, the authors write, it is associated with trauma, stress, such conditions as lupus and hypothyroidism, and over forty microbes, from hepatitis to Epstein Barr to Lyme disease. They draw on actual cases to illustrate their points and to break through the isolation that patients often feel when doctors misdiagnose or simply ignore their symptoms.

When Dr. Wallace wrote The Lupus Book, he brought hope and relief into the lives of countless Americans, in a book that sold through many printings. In Making Sense of Fibromyalgia, the authors address a desperate need for information and reassurance, in a groundbreaking book.
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Books on Coping with a Chronic Illness

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You Don't Look Sick: Living Well With Invisible Chronic Illness (Paperback) by Joy H. Selak, Steven S. Overman; Published in 2005 by: Haworth Medical Press (March, 2005); ISBN: 0789024497   

Description: You Don't Look Sick!: Living Well with Invisible Chronic Illness chronicles a patient's true-life stories and her physician's compassionate commentary. This warmhearted resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.  [ top ]

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Coping With Depression in a Chronic Illness by Sean Hoagan – Downey, ACSW; unknown publisher; ASIN: B0007AQNY0 (It can be purchased here: http://www.milupus.org/store.htm )

Description: After giving hundreds of presentations on dealing with the emotional adjustments to Lupus and other chronic illnesses, I am pleased to say that there is an array of materials on the different aspects of chronic illness available to patients and their families.  [ top ]

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A Body Out of Balance (Paperback) by Nancy Carteron, Ruth Fremes; Published in 2003 by Avery (December 1, 2003); ISBN: 1583331727  

Description: A patient and a doctor offer a unique and authoritative perspective on recognizing and treating this pervasive illness that affects 4 million people-primarily women-in the United States alone.

One of the most common yet underrecognized autoimmune and rheumatological disorders, Sjögren's (pronounced SHOW-grens) Syndrome, or SjS, is characterized by symptoms that shift almost daily, usually beginning with vague discomforts such as dry eyes and mouth, then advancing to more severe concerns such as joint pain and swollen glands. Because SjS can manifest itself differently in each patient, A Body Out of Balance provides readers with a comprehensive guide to the wide array of symptoms, traditional and complementary treatments, and invaluable coping methods so patients may devise a personal treatment plan

Provides a comprehensive guide to the wide array of symptoms, traditional and complementary treatments, and coping methods for those who are suffering from Sjogren's syndrome. Discusses such topics as pain and fatigue, emotional issues associated with the disease, and the role of nutrition. For consumers. Softcover.  [ top ]

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A Delicate Balance: Living Successfully with Chronic Illness (Paperback)  by Susan Milstrey Wells ; Published in 2000 by HarperCollins Publishers (July, 2000); ISBN: 0738203238  

Editorial Reviews: "Chronic illness doesn't come with an instruction manual," says Susan Milstrey Wells--so she wrote one. Afflicted with Sjögren's syndrome (an autoimmune disease that dries the eyes and mouth), fibromyalgia (a painful muscle disorder), and interstitial cystitis (a chronic inflammation of the bladder), she knows the ins and outs of coping with chronic illness. In A Delicate Balance, she provides a compelling mix of useful information and real-life stories (including an appendix of resource numbers for various medical and self-help organizations) to help others find the will and the way to survive and thrive.

Wells characterizes the onset of a chronic illness as the beginning of a journey toward understanding, accepting, and healing, and she organizes her book to help lead the reader on that journey. The first few chapters deal with the psychological stages of illness and the perseverance that's often needed to get an accurate diagnosis and find a suitable health care partner. Middle chapters detail the search for treatment and the effects of chronic illness on personal relationships and the ability to work. The final chapter offers the optimistic view that chronic illness is a gift--albeit one that you don't want and can't give back, but that will ultimately teach you many important life lessons. Yes, chronic illness changes your life, she writes, but such change is not necessarily bad--and having a guide like this can help you through it. --Nancy Monson  [ top ]

Books on Other Autoimmune Diseases

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Women and Autoimmune Disease: The Mysterious Ways Your Body Betrays Itself by Robert G. Lahita, Ina Yalof; Published in 2004 by: Regan Books; ISBN: 006008149X

Description: Autoimmune diseases -- including chronic fatigue syndrome, vasculitis, juvenile diabetes, alopecia, Graves' disease, Sjögren's syndrome, lupus, rheumatoid arthritis, and multiple sclerosis -- are among the hottest topics in the medical community. Although these diseases express themselves in different ways, in all of them, the body's immune system begins to attack normally functioning, healthy cells. Despite the recent surge in interest and research, these fascinating diseases are highly mysterious, frequently misdiagnosed, and controversial in cause and treatment. They are often interconnected in ways that are both misunderstood and life-threatening. And one of the biggest puzzles is why 80 percent of autoimmune disease sufferers are women.

In this authoritative yet thoroughly approachable guide, world-class immunologist Dr. Robert Lahita brings to bear his years of intensive research, patient care, and diagnostic acumen to shed light on the mysteries of these conditions, with a particular focus on how they affect -- and how he treats -- women.

One of the world's foremost authorities on the subject, Dr. Lahita strikes a refreshing balance between medical explanation and readability. Through the use of case studies, he describes the early warning signs (including minor triggers such as headaches, nausea, or exhaustion), symptoms, diagnostic processes, and the latest and most innovative treatments for the familiar -- as well as many of the lesser known -- autoimmune diseases. This scientifically sound, grounded, thorough, and sensitive work will be greeted with appreciation by anyone who wants to better understand these perplexing and often debilitating diseases.  [ top ]

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Living Well with Autoimmune Disease by Mary J. Shomon; Published in 2002 by HarperResource; 1st edition; ISBN: 0060938196

Description: Autoimmune diseases affect 50 million Americans, mostly women, who frequently remain undiagnosed and untreated, or are treated ineffectively. Living Well with Autoimmune Disease helps readers pinpoint symptoms, find the right practitioner, and learn cutting-edge approaches to reduce symptoms and reverse their disease.

Author Mary Shomon, who has the immune disease Hashimoto's thyroiditis, explains how the immune system is supposed to work, and what can go wrong. Then she discusses more than 20 specific autoimmune diseases--such as chronic fatigue syndrome, inflammatory bowel disease, lupus, thyroid disease, Graves' disease, rheumatoid arthritis, type 1 diabetes, fibromyalgia, scleroderma, and multiple sclerosis. For each, she covers symptoms, diagnosis, and treatment.
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What Your Doctor May Not Tell You About Autoimmune Disorders by Deborah Mitchell, Stephen B. Edelson; Published in 2003 by Warner Books; ISBN: 0446679240

Description: Autoimmune disorders are not well understood and therefore difficult to treat. The result is that there are millions of Americans who are suffering because they aren't being diagnosed properly, or getting the correct medical treatment they need. Here, Dr. Edelson discusses the most common types of autoimmune diseases, including lupus, Chron's disease, thyroid disease, rheumatoid arthritis, and chronic fatigue syndrome, outlining their symptoms, causes, and risk factors. He describes his own revolutionary program for treating the root of all autoimmune disorders-without drugs-providing readers with new hope for getting back on the road to better health.   [ top ]

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Thriving With Your Autoimmune Disorder: A Woman's Mind-Body Guide by Simone Ravicz Ph.D. M.B.A.; Published in 2000 by New Harbinger Publications; ISBN: 1572241896

Description: Women facing chronic pain and illness due to multiple sclerosis, rheumatoid arthritis, chronic fatigue, and other autoimmune disorders have a new place to look for encouragement. In this comprehensive and caring guide, Simone Ravicz presents a wide range of suggestions for not merely enduring illness but finding ways to thrive in spite of it. Ravicz herself suffers from autoimmune disorders. As she researched her own diseases, she encountered a shocking lack of helpful information and resolved to gather everything she'd learned for others to use. From tackling inner demons to addressing stress, diet, exercise, and medication, Thriving with Your Autoimmune Disorder outlines a complete self-help course for optimizing every day.  [ top ]

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Rheumatoid Arthritis : Everything You Need to Know  by Robert G. Lahita; Published in 2001 by Avery (August 6, 2001); ISBN: 1583331018  

Description: A practical question-and-answer guide addressing the most common concerns about rheumatoid arthritis.

Rheumatoid arthritis is one of the most common forms of arthritis, affecting nearly 7 million people in the United States. This debilitating disease of the immune system affects four times as many women as men.

Written by a leading expert on autoimmune diseases, this book is an invaluable resource that answers the most frequently asked questions about rheumatoid arthritis. It educates the reader on what the disease is, its causes, symptoms, and treatments, including revolutionary new drugs, herbs, and conventional remedies. Bibliography. Index.  
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The New Sjogren's Syndrome Handbook by Steven Carsons (Editor), Elaine K. Harris (Editor); Published in 1998 by Oxford University Press; ISBN: 0195117247

Description: Sjogren's syndrome (pronounced show-grins) strikes 2 to 4 million Americans, mostly women. Often a debilitating illness, Sjogren's is not a rare disease--in fact, it is now said to be the most common autoimmune disorder--but it is still little known even in the medical community. Women have gone from specialist to specialist for years before receiving the proper diagnosis. The New Sjogren's Syndrome Handbook is a comprehensive and authoritative guide, produced by the Sjogren's Syndrome Foundation and its medical advisors. It has been extensively revised from their original self-published edition, which sold 20,000 copies through their newsletter. Designed for Sjogren's sufferers and for physicians, it provides readers with the best medical and practical information available on this disorder. The book describes the symptoms, which can range from dry eyes and dry mouth, to hoarseness and difficulty in eating, to chronic fatigue and joint pain that can seriously impair quality of life. It offers complete information about diagnosis (there are blood tests that can be used to help diagnose Sjogren's), and provides an extensive discussion of how Sjogren's affects the various organ systems of the body, including the kidneys, blood vessels, lungs, liver, pancreas, and brain. The book also discusses treatment options (such as moisture replacement therapy) and offers tips for daily living. While there is no cure for Sjogren's, much can be done to alleviate the suffering of individuals with this syndrome. The New Sjogren's Syndrome Handbook offers everything patients need to know to cope with this disease. And because Sjogren's is greatly under-diagnosed, this handbook is a particularly valuable resource for all healthcare professionals. 
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The Sjogren's Syndrome Survival Guide (Paperback)  by Teri P., Ph.D. Rumpf, Katherine Morland Hammitt; Published in 2003 by New Harbinger Publications (March, 2003); ISBN: 1572243562  

Description: Sjogren's syndrome, currently the most prevalent autoimmune disorder in America, is disease in which the body mistakenly attacks its own moisture-producing glands in the eyes, mouth, skin, and vagina, disrupting the function of the internal organs and central nervous system. Written by two Sjogren's sufferers, this book provides medical information, research results, treatment methods, and suggestions for coping with this often debilitating disease.
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Raynaud's Phenomenon (Hardcover) by Jay D. Coffman; Published in 1989 by Icon Health Publications ; ISBN: 0195057562 

Description: This book presents the most up-to-date knowledge concerning Raynaud's disease, an autoimmune disorder distinguished by well-demarcated blanching or cyanosis of one or more digits on exposure to cold, that occurs in episodic attacks. Especially common among young women, researchers estimate that the phenomenon may affect up to 10% of the female population. The volume provides coverage of the disease as a primary illness and as the secondary result of another disorder. The only available text on Raynaud's, the book includes a comprehensive discussion of the physiology of finger blood flow, and coverage of both old and new treatment modalities. Readers will find full information on the anatomy of the disease, the clinical picture, prevalence, diagnosis, prognosis, pathology, pathophysiology, and the author's personal treatment preferences, which are backed by 30 years of professional experience with peripheral vascular diseases.   [ top ]

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The Official Patient's Sourcebook on Raynaud's Phenomenon: A Revised and Updated Directory for the Internet Age  by Icon Health Publications; Published in 2003 by Icon Health Publications ; ISBN: 0597835349  

Description: This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to raynaud's phenomenon, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on raynaud's phenomenon.    [ top ]

Miscellaneous Books

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100 Questions & Answers About Deep Vein Thrombosis and Pulmonary Embolism (Paperback) by Andra H. James; Published in May 2007 by Jones and Bartlett Publishers, Inc.; 1 edition; ISBN: 0763741051  

Description: Nearly two million Americans are affected annually by deep vein thrombosis. Whether you're a newly diagnosed patient, or a loved one of someone suffering from this disease, this book offers help. The only text available to provide both the doctor's and patient's views, 100 Questions & Answers About Deep Vein Thrombosis and Pulmonary Embolism gives you authoritative, practical answers to your questions. Written by two prominent physicians , Drs. James and Ortel, with "insider" advice from actual patients, this book is an invaluable resource for anyone coping with the physical and emotional turmoil of this condition.    [ top ]

 

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The Coumadin Cookbook: A Guide to Healthy Meals When Taking Coumadin Ò by Rene, Md Desmarais, Greg Golden, Gail Beynon; Published in 2003 by: Marsh Pub Co; 3rd edition; ISBN: 0966430824  or 0966430816

Description: If you are on Coumadin Ò patient, or if you are taking any other anti-coagulant, the amount of Vitamin K you consume each day is crucial to a stable PT/INR.  The prothrombin time/INR is the test your doctor uses to make sure your Coumadin Ò dose is within the desired therapeutic range.

A stable PT/INR is crucial to your good health.

  • Eat food you thought you could no longer eat on a daily basis!

  • Entertain family and friends and eliminate the guesswork when planning meals.

  • Restaurants can be fun again!  Take with you the list of foods low in Vitamin K (located in the back of the book)!

If you or a family member are using Coumadin Ò (warfarin sodium Tablets, USP) Crystalline or any of the Coumadin anti-coagulants, then take a look inside.

This book will be a constant reference for preparing meals and dining out that you will use again and again.  [ top ]

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The I-Can't-Chew Cookbook: Delicious Soft Diet Recipes for People with Chewing, Swallowing, and Dry Mouth Disorders (Paperback)  by Mark A., Dmd, M.D. Piper (Foreword), J. Randy Wilson; Published in 2003 by: Hunter House Publishers; 2nd edition (June, 2003); ISBN: 0897934008   

Description: When a medical condition forced his wife to eat only soft foods, the author developed 200 recipes that were soft, nutritious, and delicious. Containing recipes for soups, main dishes, vegetables, and desserts, this unique cookbook will help non-chewers fully enjoy their meals.  [ top ]

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Coping With Prednisone and Other Cortisone-Related Medicines : It May Work Miracles, but How Do You Handle the Side Effects? by Eugenia Zukerman, Julie R. Ingelfinger; Published in 1997 by St. Martin's Press; ISBN: 0312155026

From Library Journal: Prednisone has been dubbed a "wonder drug" because of its effectiveness in treating everything from asthma and rheumatoid arthritis to kidney disease and organ transplants; however, long-term use may cause side effects such as bloating, weight gain, and depression. Zukerman, a renowned flutist and arts correspondent for CBS's Sunday Morning, discovered prednisone's down sides when she took it to treat a rare lung disease. With her sister, a physician at Massachusetts General Hospital, Zukerman has written an empathetic, easy-to-understand, and factually accurate guide that offers suggestions, recipes, and exercises for relieving the drug's unpleasantness. She includes additional information about the chemistry, preparations, dosage, and a bibliography about the medication. Despite a few generalizations (rheumatoid arthritis is serious but not life-threatening), this work is recommended for consumer health collections, although readers taking the drug will want to buy their own copies. A more thorough source for libraries is the annual Complete Drug Reference 1997 (St. Martin's, 1996), which covers 10,000 drugs. Margaret Norden, Marymount Univ. Lib., Arlington, Va. Copyright 1997 Reed Business Information, Inc.   [ top ]

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2006 Lippincott's Nursing Drug Guide (Lippincott's Nursing Drug Guide) (Paperback) by Amy M. Karch; Published in 2005 by Lippincott Williams & Wilkins; ISBN: 1582554366  

FROM THE PUBLISHER: Updated with dozens of newly approved drugs and indications, 2006 Lippincott's Nursing Drug Guide contains over 800 complete drug monographs, organized alphabetically. Each monograph covers generic name; US and Canadian trade names; pregnancy risk category; controlled substance schedule if appropriate; drug class; therapeutic actions; indications, including off-label indications; contraindications and cautions; available forms; dosages; pharmacokinetics; I.V. facts; adverse effects; interactions; nursing considerations; assessment; interventions; and teaching points.

The book includes a full-color photoguide to pills and capsules, details on preventing and reporting medication errors, a quick-reference chart of normal laboratory test values, and over 20 appendices. Updates and continuing education tests are on NursingDrugGuide.com[ top ]

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Mosby's Drug Guide for Nurses (Turtleback)  by Linda Skidmore-Roth; Published in 2004 by C.V. Mosby ; ISBN: 0323030602   

Book Description: Mosby's Drug Guide for Nurses, 6th Edition is a portable, current drug handbook containing information on more than 60 drug classifications and 4,000 individual generic and trade name drugs. Developed to meet student needs, this handbook includes detailed coverage of IV drugs; extensive coverage of interactions between drugs, drug classes, herbs, foods, and lab tests; a full-color drug identification guide; and a drug classification section covering groups of drugs by function. A disorders index helps the student locate information about drugs commonly used to treat more than 70 disorders. Special features promote safe medication administration and prevention of drug errors, including identification of high alert drugs, Do-Not-Crush and Nursing Alert icons, special Do-Not-Confuse headings, and guidelines for overdose treatment. Combination drugs are covered in an extensive appendix listing alphabetical brand names along with the products' generic components and dosages.   [ top ]

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Springhouse Nurse's Drug Guide (Book with CD-ROM for Windows)   by Springhouse; Published in 2001 by Lippincott Williams & Wilkins; ISBN: 1582551243   

Book Info: Quick reference includes an A-to-Z organization, nursing process for every drug, and a CD-ROM and Internet updates. Includes full color photos of more than 300 capsules and tablets, pronunciations of generic drug names, and regular e-mail notifications of drug updates on dDrugInfo.com. For nurses and students.   [ top ]

The APS Foundation of America, Inc. does not endorse any of the above books. Most were recommended to us by other members.

 

Page last reviewed: 12/30/2015

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