The APS Foundation of
America, Inc. does not fund research at this time.
The following organizations are currently doing research on APS or
related diseases.
The Rare Diseases Clinical Research Network was created to
facilitate collaboration among experts in many different types of rare
diseases. Our goal is to contribute to the research and treatment of
rare diseases by working together to identify biomarkers for disease
risk, disease severity and activity, and clinical outcome, while also
encouraging development of new approaches to diagnosis, prevention, and
treatment.
Clinical Study
5806: Genetics of antiphospholipid antibody syndrome (APS)
Now
Recruiting: We know very little about what causes antiphospholipid
antibody syndrome (APS). Sometimes several family members have APS.
Other times, one person has APS and other relatives have a different
autoimmune disease like lupus or diabetes. Because APS sometimes runs in
families, we think that certain genes may cause APS. The purpose of this
study is to find the genes that cause APS.
Participants will be recruited for this study using brief diagnostic
inclusion criteria for antiphospholipid antibody syndrome. This
includes: (1) Persistent presence of an antiphospholipid antibody (aPL),
defined as: (a) Elevated anticardiolipin antibody level in the blood,
present in medium or high titer, on 2 or more occasions, at least 6
weeks apart; and/or (b) Lupus anticoagulant present in plasma, on 2 or
more occasions at least 6 week apart and (2) Presence of clinical
symptoms seen in patients with APS.
Click the above link for more information.
The mission of Research Division at Hospital for
Special Surgery is to attain the highest level of scientific excellence
through basic and applied research and education in orthopedics,
rheumatology and related scientific disciplines.
The goal is to identify the mechanisms underlying musculoskeletal and
autoimmune diseases and to discover and develop effective approaches for
prevention, diagnosis and treatment of these disorders.
HSS Currently has a research program on
Autoimmunity and Inflammation. For more information, click the link
below.
DISCLAIMER: APS Foundation of
America, Inc. website is not intended to replace standard doctor-patient
visits, physical examination, and medical testing. Information given
to members is only an opinion. All information should be confirmed with your personal
doctor. Always seek the advice of a trained physician in person before
seeking any new treatment regarding your medical diagnosis or condition.
Any information received from APS Foundation of America, Inc.
website is not intended to diagnose, treat, or cure. This site is
for informational purposes only. If you think you may have a
medical emergency, call your doctor or 911 immediately.
