APS Foundation of America,
Inc. (APSFA) | Antiphospholipid Syndrome (APS)
#Founded in 2005, APS Foundation of America, Inc. (APSFA) is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes, and heart attacks. We are a volunteer-run, community-based 501(c) (3) nonprofit public charity organization dedicated to fostering and facilitating joint efforts in education, support, public awareness, research, and patient services. The APSFA’s Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.
APS is an autoimmune disorder in which the body recognizes certain normal components of blood and/or cell membranes as foreign substances and produces antibodies against them. There are two known forms. APS may occur in people with systemic lupus erythematosus, other autoimmune diseases, or in otherwise healthy individuals.
#APS is also sometimes referred to as #APLS or #APLA in the United States, but that is not the medically common name, and formerly #Hughes Syndrome or Sticky Blood in the UK.
#1
cause of stroke in young people
responsible for
1 in 3
cause of stroke in young people
responsible for up to
20%
of all deep-vein blood clots (DVT)
responsible for
1 in 5
recurrent miscarriages
estimated to affect
1 in 2000
Americans
What is Antiphospholipid Syndrome (APS)?
APS is associated with recurrent clotting events (thrombosis), including premature stroke, repeated miscarriages, phlebitis, venous thrombosis, and pulmonary thromboembolism. It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL, including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.
Find a Doctor
With the help of our Medical Advisory team, our forum members, and other APS patients, we have compiled a list of doctors who are familiar with APS and currently treat APS patients. The doctors on this list may not be “experts” in APS, but other APS patients have recommended them. The APS Foundation of America, Inc. does not endorse any of these doctors—they were suggested to us by others who have had luck with them. Every APS case is unique, so you may not have the same positive experience. Please be sure to call their office to inquire directly to ensure that they accept your health insurance and are accepting new patients.
Get Involved
APS is the #1 cause of stroke in young people. There are many ways you can join the APS Foundation of America, Inc. in raising awareness of APS and fighting for a cure.
Get support for yourself or offer your experiences to others in our online forum. Donate, check out the events page, or shop our CafePress store* and WooCommerce Shop* for APS Gear. We also have an Amazon Store* for items you may need as an APS patient or a patient with a chronic illness.
Find out more ways you can help below.
Memberships
The APSFA publishes a quarterly newsletter called "Antiphospho...What?". Each newsletter contains articles written by our medical advisors, patient stories, and other related articles. You can find it on our download page and social media pages.
Fundraising events,Please join.
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